advertisement
Reply
 
Thread Tools Display Modes
Old 09-22-2009, 08:17 AM #11
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default

I just saw the other MS dude who is local in my area. I asked about LDN, since the big boy hospital MS dude says NO!. The local MS dude went on a tirade about being careful of things that claim to cure all from alzhiemers to zits. He said he would never reccomend LDN...blah blah blah...

I got turned down for Provigal, and I have an amazing policy. I too refuse to pay cash for that stuff. They wanted $1300 for a one month supply. After exhausting appeals, we are trying more natural alternatives.

I hope you are feeling better quickly!
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote

advertisement
Old 09-22-2009, 10:08 AM #12
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default

I hope your pain improves soon. I don't think my MS neuro RXs LDN either. He was lecturing us (those getting their Tysabri infusions together) about this at the last appt. I had brought up lisinopril as a possible good BP med for those with MS, since I read an article about it. He told me why it wouldn't work to treat MS, and told us about the reason other various meds and treatments don't work either. He said there are possible drug interactions with LDN. I think that's why he wouldn't RX it.

He's done decades of research and clinical trials so he knows a lot about everything related to MS it seems.
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
ewizabeth is offline   Reply With QuoteReply With Quote
Old 09-22-2009, 09:41 PM #13
Erin524's Avatar
Erin524 Erin524 is offline
Elder
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Erin524 Erin524 is offline
Elder
Erin524's Avatar
 
Join Date: Dec 2007
Posts: 5,020
15 yr Member
Default

My plan, if I can get an LDN Rx, would be to not take any other medications, so then I wouldnt have to worry about any drug interactions.

I do not take narcotics. Ever. Hate them (make me violently ill), so I really dont think I'd have to worry about a drug interaction if I could just get one of my doctors to hand over the Rx.

My arm/hand are still numb, still driving me insane, but I've had a few instances today where part of my arm felt like it was lessening the numbness. The hand, is not having fun tho. Feels like my knuckles are getting crushed.
__________________
~ Never do anything that you wouldn't want to explain to the paramedics. ~ Author Unknown ~

~ "Animals have two functions in society. To taste good and to fit well." ~ Greg Proops, actor ~
Erin524 is offline   Reply With QuoteReply With Quote
Old 09-23-2009, 05:31 PM #14
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default

Quote:
Originally Posted by ewizabeth View Post
He said there are possible drug interactions with LDN. I think that's why he wouldn't RX it.

He's done decades of research and clinical trials so he knows a lot about everything related to MS it seems.
Yeah, but he don't know nuttin about LDN!!
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Holy Moley! Twinkletoes The Stumble Inn 18 08-18-2009 11:56 PM
Help! I'm getting to tired of it all. It hurts to talk about it now. It hurts to much Brokenfriend Bipolar Disorder 18 07-21-2008 12:16 AM
Holy Cow! Twinkletoes Sleep Apnea & Sleep Disorders 3 06-22-2008 11:57 AM
The holy matrimony BobbyB ALS News & Research 0 02-14-2008 08:13 AM


All times are GMT -5. The time now is 07:06 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.