Just got back. He gave me a Rx for an NSAID that's supposed to be easier on the stomach than ibuprofen.

He also gave me a Rx for Lyrica that I refused when I found out how much money it was going to cost. ($100!!!!111eleventy!!1!!)

It hurts, but paying $100 for a Rx is just insane and hurts financially. That $100 is after whatever my insurance paid. Screw that. I'll whine and kvetch about the pain a bit more. If the pain gets even worse, then I might go pick up that Rx. Maybe I'll call the doctor and ask if they have samples (doubt it) My dad said that he'd pay for the Lyrica if the pain got any worse. I'm just going to wait on it for a bit.

Oh, asked about the LDN prescription....and of course, he said "maybe later". (ARRRRRRRRRGGGGGGGHHHHHHHHHHH!!!!!!!!!!!!!!!!!!!!! !!!)

I think I read somewhere that there are at least 60,000 MSers who are taking LDN. There's got to be something to the LDN if there are at least 60,000 people taking it and getting results.

Hi Erin,

My mother (who also has MS) is constantly knitting and crocheting and ended up with carpal tunnel surgery several years ago because of numbness in her hands along with pain up her arm. That fixed that, but for the last couple of years she's had burning pain up her arm. She tried gabapentin, Lyrica and something else with very little relief. A month ago she started on LDN and it's helped more than any of the other meds her GP had her try.

I think you should push your GP for LDN or find someone else who will prescribe it. Even if it does nothing for you, it can't hurt anything. Can you believe my mom's GP in a little town not only knew all about it but prescribed it the first time she asked?! My own GP made me give him a bunch of info first.

C

I did some googling, and there's a doctor in Omaha who gives LDN to his patients, but it's for fertility treatments (not something that I need...and it's kind of interesting to hear that people are taking LDN for fertility problems) I'm wondering if I can talk that doctor into writing me a Rx.

I think I'd like my regular doctor to give it to me tho. I'm going to give it another week, and call him back and just ask him why he keeps putting it off. I'm getting really frustrated that no one will give me a Rx for it. I wanted to cry on my way home from the doctor's today, partly because my arm freaking hurts, but partly because no one will listen to me on the LDN.

I just saw the other MS dude who is local in my area. I asked about LDN, since the big boy hospital MS dude says NO!. The local MS dude went on a tirade about being careful of things that claim to cure all from alzhiemers to zits. He said he would never reccomend LDN...blah blah blah...

I got turned down for Provigal, and I have an amazing policy. I too refuse to pay cash for that stuff. They wanted $1300 for a one month supply. After exhausting appeals, we are trying more natural alternatives.

I hope you are feeling better quickly!

I hope your pain improves soon. I don't think my MS neuro RXs LDN either. He was lecturing us (those getting their Tysabri infusions together) about this at the last appt. I had brought up lisinopril as a possible good BP med for those with MS, since I read an article about it. He told me why it wouldn't work to treat MS, and told us about the reason other various meds and treatments don't work either. He said there are possible drug interactions with LDN. I think that's why he wouldn't RX it.

He's done decades of research and clinical trials so he knows a lot about everything related to MS it seems.

My plan, if I can get an LDN Rx, would be to not take any other medications, so then I wouldnt have to worry about any drug interactions.

I do not take narcotics. Ever. Hate them (make me violently ill), so I really dont think I'd have to worry about a drug interaction if I could just get one of my doctors to hand over the Rx.

My arm/hand are still numb, still driving me insane, but I've had a few instances today where part of my arm felt like it was lessening the numbness. The hand, is not having fun tho. Feels like my knuckles are getting crushed.

Yeah, but he don't know nuttin about LDN!!