Home Menu

Site Navigation



NeuroTalk Support Groups > > >

Tysabri #38-THREE YEARS

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 09-21-2009, 07:22 PM #1
Grammie 2 3 Grammie 2 3 is offline
Member
  
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default Tysabri #38-THREE YEARS
I just got #38 and it's my THIRD YEAR ANNIVERSARY
What a blessing this med has been for me !!

Also, want to mention that on another site there was a post saying she and hubby (he has ms) went to a Biogen meeting and Dr. said NOT to get H1N1 shot if on Tysabri for fear of Guillian Barre (sp). I will call Active Source tomorrow-I'm wondering what's different then reg flu shot, which I have gotten yearly for many, many years.

Anyhoo, YEA TYSABRI
Linda
p.s. hope this posts under Tysabri threads-couldn't actually figure out how to get it there
Grammie 2 3 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
azoyizes (09-24-2009), Dejibo (09-22-2009), ewizabeth (09-22-2009), Pink (09-27-2009), Riverwild (09-21-2009), SallyC (09-21-2009), Twinkletoes (09-22-2009)
Old 09-21-2009, 08:26 PM #2
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
  
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default
Yay for #38!!!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-21-2009, 09:12 PM #3
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
WooooooHoooooo Grammie....congrats..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-21-2009, 11:35 PM #4
Judy2's Avatar
Judy2 Judy2 is offline
Senior Member
  
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Default
From one grammie to another -- WAY TO GO!!!!! It's wonderful hearing some positive news!
__________________
_____________________________________________

.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
.
Judy2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-21-2009, 11:42 PM #5
Koala77's Avatar
Koala77 Koala77 is offline
Legendary
  
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Koala77 Koala77 is offline
Legendary
Koala77's Avatar
 
Join Date: Jan 2008
Location: Australia
Posts: 12,030
15 yr Member
Default
I am so very pleasedthat the Tysabri infusions are going well for you.

I personally am not on this medication, but many friends here and in Australia are. It's extremely good news to hear how well you're doing.
__________________
Eastern Australian Daylight Savings Time
and
my temperature


.
Koala77 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-22-2009, 12:00 AM #6
PolarExpress's Avatar
PolarExpress PolarExpress is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
PolarExpress PolarExpress is offline
Grand Magnate
PolarExpress's Avatar
 
Join Date: Jan 2008
Location: Red Wing, MN
Posts: 3,166
15 yr Member
Default
WooHoo!!! It's encouraging to hear how well Ty is working for so many! Let us know what you find out about the H1N1 vaccine. I can't have it anyway (egg allergy), but I am curious..
__________________

.
PolarExpress is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-22-2009, 12:25 AM #7
ewizabeth's Avatar
ewizabeth ewizabeth is offline
Elder
  
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
ewizabeth ewizabeth is offline
Elder
ewizabeth's Avatar
 
Join Date: Sep 2006
Location: northern Illinois
Posts: 5,258
15 yr Member
Default
Yay for your success with Tysabri!

I had my 30th this month. My MS neuro said I should get the H1N1 shot (but not the mist).
__________________
Wiz

Turn Left at the next election.
.


RRMS DX 01/28/03 Started Copaxone again on 12/09/09
Last edited by ewizabeth; 09-22-2009 at 10:01 AM. Reason: doh!
ewizabeth is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-22-2009, 08:12 AM #8
Dejibo's Avatar
Dejibo Dejibo is offline
Elder
  
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default
Wahoo! way to go!
__________________
RRMS 3/26/07
.

Betaseron 5/18/07
.

Elevated LFTs Beta DC 7/07
Copaxone 8/7/07
.



.
Dejibo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammie 2 3 (09-22-2009)
Old 09-22-2009, 02:47 PM #9
Grammie 2 3 Grammie 2 3 is offline
Member
  
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Grammie 2 3 Grammie 2 3 is offline
Member
 
Join Date: Aug 2007
Location: Colorado
Posts: 374
15 yr Member
Default
Quote:
Originally Posted by PolarExpress View Post
WooHoo!!! It's encouraging to hear how well Ty is working for so many! Let us know what you find out about the H1N1 vaccine. I can't have it anyway (egg allergy), but I am curious..
Active Source said they have no info; that's it's up to your dr. The way I read the other post it sounded like it was coming from Biogen-guess not. I was planning on getting the shot and probably will.
Grammie 2 3 is offline   Reply With QuoteReply With Quote
Old 09-22-2009, 08:34 PM #10
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
  
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default
I asked about vaccines last year during an appointment with my neuro. He said there isn't any reason not to take the vaccine, it's a killed virus. He said not to take the Flu Mist or any live virus vaccine.

The next day my general physician hammered me with a booster tetanus shot, the flu shot and a pneumonia vaccine. He was waiting for the word from the neuro, got it, and I had an appointment with him the next day, so he gave me all of them at once!

I had no adverse reactions at all except for sore arms!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ewizabeth (09-22-2009), Grammie 2 3 (09-23-2009), Koala77 (09-23-2009), Pink (09-27-2009), SallyC (09-22-2009)
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »
Thread Tools
Display Modes
Linear Mode Linear Mode

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Anyone else on tysabri? barb02 Multiple Sclerosis 19 08-28-2008 09:06 PM
Tysabri? coletaterbug Multiple Sclerosis 4 08-19-2008 11:21 PM
to take tysabri or not? debbie0395 New Member Introductions 6 04-16-2008 11:18 PM
To Tysabri or Not To Tysabri--That is the question! Keely Multiple Sclerosis 3 03-10-2008 11:46 AM
Misdiagnosed for Years...Sufferers can have illness for years before knowing it Stitcher Parkinson's Disease 0 10-26-2007 11:07 AM


All times are GMT -5. The time now is 05:46 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home