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Tysabri #38-THREE YEARS

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Old 09-21-2009, 07:22 PM #1
Grammie 2 3 Grammie 2 3 is offline
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Default Tysabri #38-THREE YEARS
I just got #38 and it's my THIRD YEAR ANNIVERSARY
What a blessing this med has been for me !!

Also, want to mention that on another site there was a post saying she and hubby (he has ms) went to a Biogen meeting and Dr. said NOT to get H1N1 shot if on Tysabri for fear of Guillian Barre (sp). I will call Active Source tomorrow-I'm wondering what's different then reg flu shot, which I have gotten yearly for many, many years.

Anyhoo, YEA TYSABRI
Linda
p.s. hope this posts under Tysabri threads-couldn't actually figure out how to get it there
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Old 09-21-2009, 08:26 PM #2
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Yay for #38!!!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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Old 09-21-2009, 09:12 PM #3
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WooooooHoooooo Grammie....congrats..
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Old 09-21-2009, 11:35 PM #4
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From one grammie to another -- WAY TO GO!!!!! It's wonderful hearing some positive news!
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.....Judy
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Old 09-21-2009, 11:42 PM #5
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I am so very pleasedthat the Tysabri infusions are going well for you.

I personally am not on this medication, but many friends here and in Australia are. It's extremely good news to hear how well you're doing.
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Old 09-22-2009, 12:00 AM #6
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WooHoo!!! It's encouraging to hear how well Ty is working for so many! Let us know what you find out about the H1N1 vaccine. I can't have it anyway (egg allergy), but I am curious..
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Old 09-22-2009, 12:25 AM #7
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Yay for your success with Tysabri!

I had my 30th this month. My MS neuro said I should get the H1N1 shot (but not the mist).
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Old 09-22-2009, 08:12 AM #8
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Wahoo! way to go!
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Old 09-22-2009, 02:47 PM #9
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Quote:
Originally Posted by PolarExpress View Post
WooHoo!!! It's encouraging to hear how well Ty is working for so many! Let us know what you find out about the H1N1 vaccine. I can't have it anyway (egg allergy), but I am curious..
Active Source said they have no info; that's it's up to your dr. The way I read the other post it sounded like it was coming from Biogen-guess not. I was planning on getting the shot and probably will.
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Old 09-22-2009, 08:34 PM #10
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I asked about vaccines last year during an appointment with my neuro. He said there isn't any reason not to take the vaccine, it's a killed virus. He said not to take the Flu Mist or any live virus vaccine.

The next day my general physician hammered me with a booster tetanus shot, the flu shot and a pneumonia vaccine. He was waiting for the word from the neuro, got it, and I had an appointment with him the next day, so he gave me all of them at once!

I had no adverse reactions at all except for sore arms!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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