Having had neurological sxs for almost 10 years now with no real answers or dx... yes you can say limboland expert!

I have had vertigo spells, I deal with weakness in right side, numbness/tingling painful but thanks to neurontin now I do not feel the painful part as much. I have spasticity and on baclofen for that, lack of sensation on the right side.
When stress or overtired, it all is worse, oh eye blurriness on that right side... and other stuff. Side drs like neuropysch that I seen for my memory deficits, and any other side kicks.. PT dr etc... all will ask me Have you been tested for MS?? any neuro I have seen says they do not know... or that it all is anxiety without any anxiety sxs.. and that I am clear of symptoms when pregnant since I am happy then..... (people who know me I have always been a happy go lucky person... and calm and just easy going) PT dr was like no way are you anxiety type that would get to the sxs you have been dealing with.

anyhow..sorry rambled...

How do I get thru it, well I do my best, I try to remember life is short and keep enjoying the kids and family time. I work full time on my feet which is tough but I keep going basically. On tough days, I sometimes have tears... but I have hubby support thru this all so much it makes a difference.

find a GREAT doctor is my advice, one that even if tests are clear he listens to you and how your body feels... good luck and hugsss,sarah

Dejibo - I was trying to be really thorough and reply to everyone and I forgot you! lol

Frustrating is an understatement!
Some friends I speak to think it's 'stress' (I hate that one!)...but most have stopped trying to guess now, or refer me to their whizz-bang natural therapists who cured Aunt Betty.. etc.

Sabimax - 10 years!!!!
I have nothing to whine about!
I do have a good neuro. She says she knows it's not in my head, or stress related. She said stress usually presents differently.

I'm trying to be organised and start charting my sx's on the computer. I use a notebook and it's a mess.
I know there are 'symptom trackers' on the net. Does anyone know of a good one where you can enter your own symptoms and personalise it?

Just because the radiologist's report says "nothing has changed" doesn't mean "nothing has changed". My first MRI had 2 spots, which wasn't enough when correlated with my hearing loss to give me an MS diagnosis. I went 2 years with really no symptoms to speak of and had 2 MRIs where the radiologist's report said "no change". After the 2nd one, I almost didn't go to the neurologist for the annual followup, thinking whats the point.

I did, and after she looked at the MRI scans, she came back and said "a picture is worth a thousand words". What the radiologist meant was that there was no change...in that I still had unexplained high intensity spots on the MRI. Except now instead of 2 I had 5-7...and an MS diagnosis.

So don't be so sure that the MRI is clear just because the report doesn't mention anything...go in with an open mind and talk to the neuro. If you trust her and believe in her, let her do the job you are paying her for (to figure out what is wrong).

Other than that, don't worry about not having a name for it. Just live your life to the fullest doing the things you CAN do and don't worry for now about not having a name for the things that you can't. Live your life instead of living your disease...whatever disease or affliction it may turn out to be.