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Old 10-09-2009, 10:06 AM #1
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Originally Posted by Aarcyn View Post
Just so you know. I just had a blood test run for Osteoperosis. I have ample amounts of B12 (I like broccoli) and Vitamin D.

I have PPMS and I am clearly progressing.
Did this doctor give you your numbers, Aarcyn?

Your B12 should be at 500 or above to be normal.
Broccoli does not have B12 in it, but it does have folic acid.
http://www.nutritiondata.com/facts/v...roducts/2816/2
B12 comes from animal sourced foods. It can become low if patients take daily acid reducing drugs, long term antibiotics like used for Lyme disease, or metformin for type II diabetes.


That's great that you have good Vit D levels. Most people do not.

Many lab ranges still reported in the US use antiquated levels of B12 going down to 200 as normal. People can have many neuro symptoms at levels in the 200's.
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Old 10-09-2009, 06:19 PM #2
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Hi MrsD

Yes my PCP gave me the numbers. I was recently diagnosed with Osteoperosis so I had a blood work panel done.

My PCP's husband has MS so I feel confident that she was reading my chart correctly. At least I HOPE so!

There are lots of ways to get one's vitamins. I was being a bit "flip" when I mentioned eating a lot of broccoli.
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Old 10-09-2009, 06:32 PM #3
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the reltionship between B12 defficiency and MS is still not known. I's true that both diseases can cause neurological symptoms, but what is not knon, is whether they have anything at all to do with each other.

I was tested for the B12 defficiency a long time ago and was A-OK. So my MS was not a B12 illness in disguise.

Remember, this is a business report, so the price of B12 is going up, as we speak/type..
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Old 10-09-2009, 07:19 PM #4
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When I first went to the doctor with a symptom of 'tingling toes', he ran me through a battery of tests and we discovered I was deficient in B12. At first, we thought it (the tingling toes) could be due to the fact that I was a strictly practicing vegan (consuming no animal products whatsover) and hoped that after receiving a series of B12 injections to get levels up to normal - after which I'd receive monthly injections to KEEP me normal - my sypmtoms would go away. They did not. That's when an additional symptom appeared, Lhermitte's sign. It was at that point I was referred to a neurologist for consult, MRI and spinal tap. The MS diagnosis came shortly afterward.

Whether my b12 deficiency is related to the MS or not I don't know, but having both the deficiency and the MS diagnosis does seem to be pretty common amongst the people who post on the MS message boards....
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Old 10-09-2009, 07:30 PM #5
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Sounds like a good poll question, Becca.

Who here has both a DX of MS and B-12 Defficiency?
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Old 10-11-2009, 08:16 PM #6
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I've been just above high limit (i'll get #'s tomorrow) since 1 year into MS which was progressing very rapidly. Late diagnose in 2006. Losing my left hand feeling & thumb muscle throughout 2009. Was 100% till Jan 2009. Lost right thumb muscle by 2007.

I take Nature Made? 500mcg 8,333% go figure it puts me just a tad above range.
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