F2U - we both have the very same sx's. Both my feet and both my fingers are numb. My feet can feel incredibly cold but the skin is warm.

Numbness has advanced over the past few years, left foot is more numb and right foot is less cooperative, does not move as well.

left hand is more numb than the right.

I am PPMS so there is nothing other than living with the sx's and just hoping it goes slowly rather than quickly.

Both my pinkys are numbish and creaping from pinky towards thumbs.
Cant sense remote control buttons like I did.
Forearm by elbo.
Tops of hands tingly.
Right thumb muscle gone, left has started to follow since Jan 09
Bend neck to look hard down and forearms tingle (this was 1 neuros test)
Paraplegia since 89, MS diagnosed 06

For the last many months I have been fearing that I am progressing into SPMS. I haven't had a giant relapse for more that a couple of years, but everything seems to be steadily worsening. I have had this thing in my neck before like even over twenty years ago and just thought it was my discs in my neck. But at this point, after what you said, I'm pretty sure it is the ms. I've never mentioned this to the neuro, but I think I will next visit. Do you find all of your sx worsening gradually? You PPMS, how long have you been dx?
Thanks for you input

AND THANKS TO ALL FOR YOU COMMENTS IT HELPS TO TALK...

Long time, no see ... friend!

L'hermittes is what you are experiencing with the zapping down from your neck. That is from damage to the C-spine, and the damage could be from any number of things, including a MS lesion.

The numbness in your hands is from the same thing. As the picture (of the full body) on this site indicates, it has to be going on in the upper C-spine to affect the hands:

http://www.aqavic.org.au/sci_facts/whats_sci.html

That pic shows all the sections of the body that can be affected, BELOW the area of spinal cord injury/trauma/lesions.

Cherie

Good to hear from you Cheri. I've been lurking and reading more than commenting these days. Thanks for the webpage. I'll talk with my neuro about this, but won't see him for a couple more months. It's nothing real new, just getting worse.
Thanks.

I think a call to the neuro office is a good thing. With my doctor office, it goes to his nurse practitioner/co-worker/I have no idea what her title is and do not really care because she is the person that listens and relays the information.

I just know her name is Lynne!

But call because you feel your situation is progressing and that, in itself, is your reason to call.

Doctor's decision from that point on. He may want to get an MRI if you have not had one in a while.

I was dx'ed in 2005 but I had sx's for quite a while, I was told long ago that I had arthritis in my neck so I attributed some sx's to the faulty dx. Not that it really mattered, MS is MS. IMNHO.

I am now walking with a rollator. Since walking is slow and laborious, I got a prescription for an electric vehicle. I chose a wheelchair that breaks into pieces so that we can pack it in the car trunk for outside excursions.

But I am still walking around, just not hiking any trails.

Call your doctor and let him/her know you think you are progressing. That's my thought.

I too am using a rollator now, especially when I leave the house. At least at home I know all the places I can hold on and catch myself. But I just can't keep my balance anymore. I have to use an electric cart if I go in a store.

I am going to give myself the rest of the week and see how it goes. Then If I need to I will definitely call my neuro. I just know my only option he gives me may be steroids and I only want to do that as a last resort.

Basically, it sucks...doesn't it. I'm always telling myself that things could be a lot worse. And I know they can... many patients and caregivers on NT can attest to that. But some days it doesn't help much when we are going through what we are going through.

Kinda a gloomy day for me! Thanks for the input.

(((((((((Friend2U))))))))

Sending you good vibes and a pocketful of hope.

I feel so 'well' and able these days that I feel a bit of a fraud for being here but I've been where you are. Phone your specialist I reckon.

Yes, it sucks and viewing through the lens that it could be worse does not help the present condition.

I am mentally sometimes "better" at presenting a positive outlook but there is not one moment in my life that I don't wish I could go back to the time when MS was an illness that I was vaguely aware existed as opposed to my reality.

I am still the ONLY person I know with this disease if I disregard NT and any group or event in my area.

I have a few friends that have survived breast cancer. No friends that have MS.

All my friends are still physically fit.

I do not wish anyone ill. Rather, I am envious and jealous. I keep my personal demons from them.

I can get pretty dark!!!