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#1 | |||
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Magnate
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Actually I have been following an online video blog of a patient with MS as she has undergone stem cell therapy in costa rica. it's on youtube. I think stem cell therapy really is the most promising and least invasive/toxic option out there. The only prpoblem for me, is the inability to pay for it and travel to get it done. But you may want to check this one out.
http://www.youtube.com/user/hollyhuber
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. I am not spoiled! |
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"Thanks for this!" says: | SallyC (10-20-2009) |
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#2 | |||
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Elder
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Welcome to NT msozwoman.
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Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
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#3 | |||
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Magnate
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Insurance company better get off their high horse and approve the TY very soon...Like in the next day or two. Because I am about to call the neuro and make her very unhappy.
Did my Avonex last night (which I put off from Sat until after I spoke to doc). Normally do it during the day but honestly was trying to forget about it when DH2B offered to stick me in the arm. (And by offered, I mean threatened to handcuff me to a chair and stick me anyway, so I can choose the easy way or his way). And then.... Broke out in hives again on my legs around midnight. . . Then woke up at 4 am with the flu like yuck! I am so done with this drug! And it was my last dose, I am at this point saying I am not willing to pay for yet another shipment and I am not willing to subject my body to this any longer. I get that she wants me on a DMD until the TY gets approved; but we already know that said DMD is not working for me, she is taking me off of it for this reason. So I will call her today. Wish me luck.
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. I am not spoiled! |
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#4 | |||
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Grand Magnate
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Good luck! Your neuro cannot make you take a drug you are not willing to take. It sounds as if you have given it "the good college try."
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#5 | |||
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In Remembrance
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Aren't you supposed to be off the other DMDs, for a time, before starting TY?
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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#6 | |||
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Magnate
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A month...but she wanted me to stay on the Av until the uns approved the ty. Which makes no sense bc it is not working.
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. I am not spoiled! |
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#7 | |||
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In Remembrance
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Quote:
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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