So sorry, (((((Barb))))))

When I couldn't take the Neurontin anymore, because it stopped working for my sensory symptoms and that darned burning. I was switched to Lyrica.

I did wean off the Neurontin slowly, after 6 years on it. I was up to 3600 mgs during my relapses. I had swelling of my feet and ankles so bad the skin on the top of my feet cracked open and would bleed.

The skin could not stretch anymore on the top of my feet. My feet, ankles and legs, went back to normal size, but I have stretch marks on the top of my feet, and I have skinny feet again.

When I tried the Lyrica my symptoms got worse. What it was supposed to help, worsened it. So I only did it for two weeks and got right off it.

I have not had any of that Epilepsy medication now for many years. I don't have Epilepsy, so I would not go back on it for anything. It helped for some of my problems, mostly made me sleepy, but not worth the swelling and pain.

It is addictive so I am glad I went off it. It helps some people, but if you have problems with it, then wean off it, unless you have Epilepsy, then you need something to replace it. JMO

I take Clonazepam (Klonopin) for burning mouth, having tried anti depressants and anti convulsants. It's addictive, but it's also the only one that's helped. Thankfully low dose is what works for me, so I am not taking too much of it.

Barb, what did you decide to do? Still on the Lyrica?

Laura, I take Klonopin too. I take it for my tremors. It does help with those completely. Hands and head.

But, sorry to say, it doesn't help my burning, I wish it did. Klonopin (Clonazepam) helps with my swallowing issues too, because it relaxes the spasms in my esophagus, that won't let the food or liquid go down and I choke.

All medication works for some and not others, we are all unique that way.

We need one pill that fits all. One that helps us all with all our symptoms. A girl can dream can't she?

Barb, have you tried Klonopin? (brand name or the generic). It takes away internal shaking and buzzing. It is the only drug in this category that has anti-tremor properties.

Others are close, like Lorazepam, but are missing something, and doesn't work for me. JMO

It's weird Lady, Klonopin helps calm my burning mouth, but didn't affect my head pains what so ever. Cesamet works on those...

So I take 2 different drugs to have pain relief in 2 different areas, even though in both cases the pain is that of burning.

Im on lyrica right now, 3rd week.... last week when i upped the dose to 100mg 2x daily i was going to town with my mom and got super emotional, and then eventually started passing out while eating and talking, she had to take me home and i about fell in my yard i dropped everything in my hands, i dont know if it was the lyrica or something else, i havent stopped taking it, i just bumbed up to 150mg 2xday and \havent had another problem... i still get headaches tho, not as often which is an improvement but i do still have them dont know what to do

Lyrica knocked me out. Literally could not stay awake on that stuff. I only took it for about ten days.

The scary part about Lyrica. It made me swell up with edema like you wouldnt believe. Scared the heck out of me and my neuro and my regular doctor. They made me go get an echocardiogram for some reason because of all the edema. (found something slightly strange with my heart, but said it wasnt anything to worry about...altho I've been worrying a bit about it lately. I think the weird heart thing was underlying, and not directly related to taking the Lyrica)

Lyrica is related to neurontin. Neurontin makes my feet and legs swell up like crazy, but it takes a few weeks for that to happen. Lyrica caused the edema for me within days. I quit Lyrica cold turkey (I dont recommend that at all) Apparently I'm one of a percentage of people that are sensitive to medications like Lyrica and neurontin. They never worked for me anyways, so I'm not worried about ever taking either of them ever again.