Is anyone else, sick and tired of being sick and tired? and, is anyone else PO'd at Big Pharma for playing with us and our disease, by offering us Meds that are worse than the illness and are not even close to a cure and yet rapes our piggy banks?

Run(ha) to your phones and call them all up and holler into the phone..."I'm not gonna take it anymore" and hold the waste can close, as you plunk in your crappy meds..

Raise your hands and say "Aye"



Disclaimer.....Do this at your own risk!!

Sally - LOL! I did throw my lyrica away this week. I haven't heard back from my neuro on that decision.

**raises hand.....me...me...aye...aye!**

They're getting rich.....while using us a guinea pigs for their "medicine".

This is one of the very reasons I stopped my DMD. It wasn't working, it was causing way more side effects than benefits for me. And.....it was costing my insurance company upwards of $3,000 a month. My current med (LDN) has given me my life back. And my piggy bank seems much happier!

I have a couple of bagsful of meds I've been taken off of...those stupid 90 day rules the pharmacy has wastes so much medicine...I hate it!!
This health care reform isn't addressing the costs of meds or doc/hospital bills the way I had hoped. At least let me get my meds where they're cheaper!!

Being PPMS one of the few good things is everyone, including Neuro know nothing works. First neuro and I gave Rebif a try. Nothing. He finally told me to stop with NO guilt. I'll try stuff (Novantrone, 4-AP) but makes me feel worse, not better. Prefer doing nothing. C'mon Pharma - I'm running out of time.

**raises hand*** Aye!

I got a very nice new computer today, and have been busy trying to set it up. I could normally do this in my sleep, but I am so tired, and run down, I cant get this done. I am gonna have to leave it and come back to it. That is just sad to be too tired to play with new toys.

Aye. I'm with you. I've chucked out loads of meds that were cack.

But i must admit, i'm not sick of my life. It's different than it was but it's still ok. A lot has changed but I'm so much happier and calmer.

Is my Beta doing it for me? Who knows. But I'll keep jabbing and see how I go.

Like I've said previously, I 'knew' I'd get MS years ago whilst working in a neuro unit. I have a further feeling that I'll be ok for a while but I will end up unable to cope and at that point, my darling man will put me out of it.

Until then, bring it on...

I didn't say sick of my/your life, Pud's....I said "sick and tired of being sick and tired". I'm not sick of my life either. I rather enjoy each day, in my own way. I don't do much, but I do it well.

I miss my old spontaneous self and feel a bit of a prisoner in this MS body.....and the poisons they're feeding us...Grrrrrrrrrr.

You are so right SalPal. When my new neuro convinced me that I had
to go on Ribif this past year, because he said my MRI showed more lesions
then I ever had. Also this was the only way to go at this time if I wanted to
have any kind of life.

Well I thought it would kill me. Felt worse then before. Mind you I have
never been on any of the drugs since I was dx 24yrs. ago. He would not
show me the results of the tests, always an excuse to show it later.

Now LDN is my friend, and I FEEL GREAT compared to that horrible
Rebif.

Have gotten off of the strong pain meds, cut back on dose of neurontin.
Still have the bad and good days, but they are better then before.


Jappy

didn't think you were sick of your life sal. tired of being sick and tired, i know.

i just added my own thing. i'll go now...