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Hi all,
I guess I'm posting to have a vent, and maybe gain some advice too?! The lowdown: My neuro has given up, says it not MS though, but doesn't know what, and has referred to me 2nd neuro who I see in 3 weeks. great, hope for some answers. in the meantime the pattern of flare-up of sx seems to be for a week, then settles for about 3-4 weeks. (still with sx, but mild). At the moment it's flaring, and this time the pins and needles/prickles are much worse. yuk. I'd been avoiding phoning my aunt with MS - hadn't spoken to her for 25 years! It was great to chat, but not good to hear her sx and me agreeing with some of hers. But OMgoodness it was HILARIOUS when we had both forgotten what she was talking about!!! lol. She said, "oh I get forgetful", and I laughed and said, 'Don't worry so do I"...."Now what were we talking about?". A positive experience, but in my face too - along with chatting to my sister 2 days before who has a 'maybe MS' dx. I've just got great news of a new job next February (yay!) Only 9hrs a week, but still scary having a committment. my youngest son starts school next year, so that's why i'm looking for a permanent job. Currently I can cancel work (with an agency) if I'm 'unwell', but this new job won't be so easy. I'm worried about trying to hide it. I'll be preschool teaching - on my feet. I have probs with my legs.... Any suggestions on the job dilemma?
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Michelle, 50yo, Australia No dx - just questions. |
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