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Old 11-01-2009, 08:07 AM #1
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Originally Posted by binx View Post
thank you all so much for taking the time to reply. i don't think anyone who hasn't dealt with neurological issues first-hand can understand how isolating and maddening it can be, so i am truly grateful for your input.

dear brain: i have desperately tried to avoid the surgical remedy, but now that i am dealing with bladder issues and my legs are getting more spastic and weak, if i am truly not dealing with MS or another demyelinating disorder, i have to get the herniated disc off of my spinal cord. i know the outcome can be really grim for people who have spinal surgeries, especially when multiple levels are compromised like in my case. my own beloved sister underwent a 5-level laminaplasty about 8 years ago, and also had a subsequent ACDF; she is now crippled with pain and permanently disabled.

shelley: i responded to you via private message. i think i may have sent it like 25 times or something by accident. please accept my newbie apologies!

sallyc: i appreciate your response and thank you for the well-wishes with respect to my surgery.

i see my neurologist again on wednesday and hope he can come up with some other hypotheses about this crazy eye business, and i will press him for a t-spine MRI once again.

than you again, and i am sending you all healing thoughts as well.

best wishes,
binx

What have you tried? Have you been through physical therapy? Steroid shots?

There are less invasive things that may help. Even meds may ease or reverse your sx. And sometimes sx ease up on their own, too.

My biggest concern for you - aside from that surgery itself is a big concern - is that if you do one levl, you put stress on the level above and below.

since you have issues with 3 levels, you will soon enough have issues above and below them - then what? How much neck does that leave you with lol?

I would suggest, when you talk to the neuro, that you approach some less invasive tx. What can it hurt? And also, get some other opinions on this surgery, if you really need to go ahead.

Seriously, would you buy the first house you walked through the first time you saw it? I would respect my spine enough to talk to an osteo surgeon and a NS, and do a lot of reading and thinking on this.

I'm only saying, because I had someone say this to me and now I could hug him. He said "Are you using your arms?" (That was my worst sx) I said yes, it was bad but I could use them. he said "Then you have time to try a few things. Don't let a doctor bully you."

I'm not trying to bully you, just trying to offer MHO. And I am not subtle, sorry!

Good luck with all this.
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Old 11-01-2009, 02:56 PM #2
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hi brain,

thanks for your input. i wouldn't be posting here if i weren't interested in everyone's opinions, so be as direct as you like. i don't take it personally.

i am going to send you a PM since our discussion has moved away from MS for the time being.

binx
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Old 11-03-2009, 12:23 AM #3
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Hi binx,
eons ago I was given Paxil, when I was having daily hives, to try to calm me or them. 10 mg sample I was given. After one month my eyes dilated, like I was an illegal drug addict or something.

When I showed my eyes to my then Neuro, he said you can't take that drug stop immediately. SSRI class of drug.

Fast forward to a new Neuro, 15 years later, I was given Cymbalta for pain. In one week my eyes dilated complete again. I was taken off the drug and that was the lowest dose in her sample pack too.

So my question to you is:

Do you take a selective serotonin and/or norepinephrine reuptake inhibitor (SSNRI) or SSRI? I never had depression or have used anything fro depression, but these were for off-label use.

I thought my eyes looked pretty, all black with a tint of green around the edge. This was an adverse drug reaction not listed on the print out. Something in my brain did not like those drug.

Some are used for depression or anxiety. Are you on any meds for this? The eye dilation might be a drug you take, not part of the disorder you have. JMO

Maybe this is helpful to you
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Old 11-05-2009, 03:55 PM #4
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hi binx,

welcome to NT. i'd really like to give you advice but i'm stumped.
it doesn't seem like MS but something is definitely amiss.

i hope the surgery alleviates some of the problems.
don't give up. keep seeking answers and you will be your own best advocate.

keep us posted.
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Old 11-06-2009, 04:55 PM #5
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thanks for the additional replies.

hello, nurse nancy: thanks for your kind thoughts. i agree, something is definitely amiss, and i hope we can figure out what it is sooner than later. i am going back to the neuro-ophthalmologist this afternoon to hear what he has to say about this crazy eye business of mine.

hi lady: i was taking an anti-anxiety medication called buspar until about a week ago and i stopped after the eye thing. i asked my neurologist on wednesday if he thought it could have made my pupils dilate like that and he said no. i am not currently on any other medication, so i just don't know what to think at this point.

it seems we are getting closer to ruling out MS, but i just wish someone could figure out what in the world is going on in my body!!

thanks again to everyone for "listening".

best wishes,
binx

Last edited by binx; 11-06-2009 at 04:56 PM. Reason: added some details.
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