FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#1 | ||
|
|||
Member
|
I have posted on this forum a few times. I check it every day but often don't think I have anything to say. Well, today I am asking for some sympathy.
I have been diagnosed with MS for at least 15 years. My symptoms have been mild with only 1 or 2 real flairs. I considered myself lucky. Lately my CPK levels from my blood tests have been high. My neuro was very concerned but I figured it was no big deal. Then, I began having stiffness and pain in the muscles of my thighs, arms and back. I knew it was not MS but did not know what to think. I decided it was just old age and started taking motrin. Well, the motrin did not agree with my stomach so I went to my PCP and asked for something for pain. Her response was, "let's find out why you are in pain first." She ordered a muscle biopsy - not fun - and I am now diagnosed with polymyositis. What is this? you may ask. It is a rare, autoimmune disease causing muscle inflammation and weakness. Like I need something else! My mother always tells me how proud she is of me because I do not complain and just get on with my life despite MS. I have decided I am not going to be the same this time. I am complaining. I am whining. I am mad! The treatment for the myositis is low dose steroids so I am now on a prednisone taper to find the right dose. I feel less pain and stiffness already. I am hoping that the steroids also help the MS so there is some benefit of having two whammies. I hope next time some muscle impacting illness comes along it decides to miss me. |
||
![]() |
![]() |
"Thanks for this!" says: | Aarcyn (11-03-2009), AZjanie (11-04-2009), barb02 (11-03-2009), Blessings2You (11-03-2009), braingonebad (11-05-2009), Dejibo (11-04-2009), dmplaura (11-10-2009), gonnamakeit (11-04-2009), Kitty (11-03-2009), Koala77 (11-04-2009), NurseNancy (11-05-2009), PolarExpress (11-04-2009), SallyC (11-03-2009), Twinkletoes (11-03-2009), TwoKidsTwoCats (11-04-2009) |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
Need To Vent | Tourette Syndrome | |||
Need to Vent~~ | Thoracic Outlet Syndrome | |||
Just a vent................ | Survivors of Suicide | |||
Can I Vent? | Peripheral Neuropathy | |||
anyone else had this pattern of PN development? | Peripheral Neuropathy |