I forgot to add that the MS Society of Canada just announced today they will give out research grants to study CCSVI. That is really significant stuff!!

http://www.mssociety.ca/en/releases/nr_20091123.htm

Also check out: http://www.mssociety.ca/en/research/...091021_faq.htm

This is also completely awesome. Go MS Society!

Like you mention, I've accepted I'll likely live in pain I already developed for many years to come, but I want to prevent further damage.

Hey... think maybe the MS Hug is actually this restriction of flow in the neck veins? I thought of the Hug right away. .. ...

Thanks, Natalie.

We are not all of one type of MS, so, Maybe this is the one to stop progression in the people who have this restriction and for the rest of us, it's LDN,

They did say that one of the first signs of having this CCSVI is, Vericose veins in the legs. I don't have that.

When I told my DH about CCSVI, he asked, "Then why does MS affect people mostly in areas far from the equator?"
Hmmm...maybe more than one thing can hit the body...
anyway, I'm definitely going to bring this up at the next neuro visit.

Welcome to NT, Kazman!

FWIW I don't think MS mostly affects people in areas far from the equator although I guess a majority of the world itself is far from the equator.

As I understand it, vitamin D forms part of the blood brain barrier and if vit D is deficient in a blood brain barrier already at risk by increased venous pressure...?

I'm only an AHT but I smell good science in Dr. Zamboni's work .

Deb
(Crawling back under my rock.)

Hey now!

C'mon back over 'ere!

Nice to meet you!

Information from a lot of sources on the prevalence of MS and equatorial distance:
http://www.msrc.co.uk/index.cfm?fuse...ow&pageid=2325

This was one of the first things I thought of when my skepticism gene kicked in when I first started reading about CCSVI. Like I said, there's so much we don't know about the body and the brain...It could be genetics, it could be environmental, it could be diet, it could be we just got the luck of the draw!
I think at this point every theory is worth investigation, and promising theories need more followup.

One question for everyone. My brain doesn't want to answer me right now: Does MS have any association similar to the MJ Fox Foundation, where money is being funneled into the most promising scientific studies? It seems to me that there is one but I cannot recall the name and I would like to see if they are doing any funding of this theory and the studies related to it. TIA!

I am also not a believer in the Vitamin D theroy

I spent most of my childhood in the sun, I have had skin cancer to prove it. I also drank tons of milk. I had MS symptoms starting in childhood.

Welcome to NeuroTalk, Deb

I agree with Snoopers..HI!

There is no and won't ever be, one universal cure for MS.....Too many kinds, too many causes and too many treatments.

However, this one may help some people, so it should not be dismissed....nor should any other legitimate treatment.

And don't forget, Big Pharma doesn't want something cheap and simple, for MS, to come to market!!