FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
#1 | |||
|
||||
Magnate
|
I know that this has been posted on here before but I never actually read everything about it until now.
zapalicious posted back in June: http://neurotalk.psychcentral.com/sh...ighlight=CCSVI Someone recently asked me for my thoughts about this and I decided to look into it a bit. I went and read every darned link out there. I probably need to absorb it more, and I will. For me this means re-reading everything again, following up on all the scientific stuff, anatomical stuff, medical terminology, asking questions to every person in and out of my family who is a healthcare provider that I know, and just immersing myself in it until I am sure I have it in my head, sort of like I did with Tysabri when it was prescribed to me back in 2005. I know that we have been around the world on new stuff going on and that there's all sorts of theories out there and we have digested and debated them over and over. Most of the stuff that comes down, I take with a shovelful of sand, rather than a grain, but I cannot help but think they may be onto something here. I'd welcome a sane, educated dialogue here for this procedure. We have some of the best brains on the planet right here. If we put them together maybe we can make some sense of it, pros and cons, for people who are interested in this procedure. I'm not interested in bashers, new people coming in and shoving stuff down our throats and argument, just an open room forum to discuss it. Anyone for a swim? Pool's OPEN! ![]()
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
|||
![]() |
![]() |
"Thanks for this!" says: | Aarcyn (02-06-2010), AfterMyNap (02-06-2010), dmplaura (11-11-2009), jeep4wd (11-23-2009), Natalie8 (11-14-2009) |
![]() |
#2 | |||
|
||||
In Remembrance
|
Immma gonna have to look it up and mull it over in mah wittle brain.....be right back...
![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
![]() |
#3 | ||
|
|||
Member
|
The findings for this Italian research are supposed to be published this month. I am eagerly waiting to read it when it is available.
gmi |
||
![]() |
![]() |
![]() |
#4 | |||
|
||||
Elder
|
hmmm...I will have to do some research...what's the temp of the pool water? Not. too hot, I hope
__________________
Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
|||
![]() |
![]() |
![]() |
#5 | |||
|
||||
Wise Elder
|
RW - I'll have to do some more reading up on this. I do find it interesting both this thread and your "Real-Time Observation . . ." thread have to do with the vascular system. Are the T-cells the "obstruction" they are describing in the CCSVI article? After reading your other post, I did wonder about some sort of blockage - kind of like blood clots/strokes. Then to see this post, now I am really starting to wonder . . .I'll do some reading and try to write a more intelligent response.
![]() |
|||
![]() |
![]() |
"Thanks for this!" says: | Riverwild (11-10-2009) |
![]() |
#6 | |||
|
||||
Elder
|
Well, from the little I've read about it... it makes sense in a way. We know that patients respond well to a heart healthy diet like the Swank diet. Anybody responds well to a heart healthy diet because it's good for you.
If you take fish oil, it can make you feel better. Doesn't it help circulation as well? So if you do something to improve circulation in a certain spot, wouldn't it follow along those lines? When I eat healthy, I feel a lot better, MS wise. That's my totally off the cuff view for now. ![]()
__________________
Wiz Turn Left at the next election. . RRMS DX 01/28/03 Started Copaxone again on 12/09/09 |
|||
![]() |
![]() |
![]() |
#7 | |||
|
||||
In Remembrance
|
Well, I don't know, River. I'd have to be pretty dang sure it would work, before I'd have a risky operation, to have stents or balloons parked in my veins.
![]() I'm waiting for the big definitive report.. Thanks for bringing this up for discussion, River. ![]()
__________________
~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
|||
![]() |
![]() |
![]() |
#8 | |||
|
||||
Senior Member
|
Chronic cerebrospinal venous insufficiency in patients with multiple sclerosis
by: Dr.Zamboni http://www.youtube.com/watch?v=yGFe-3h26Vs There used to be voice, just video..so now you can watch what occurs.
__________________
LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
|||
![]() |
![]() |
![]() |
#9 | |||
|
||||
Member
|
There is a Facebook page with links to latest research and publicity. In google just type in CCSVI Facebook.
__________________
On Tysabri and love it. . |
|||
![]() |
![]() |
![]() |
#10 | |||
|
||||
Magnate
|
Quote:
Thanks to RW and all for the great information!
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
|||
![]() |
![]() |
"Thanks for this!" says: | Riverwild (11-17-2009) |
Reply |
Thread Tools | |
Display Modes | |
|
|
![]() |
||||
Thread | Forum | |||
Ccsvi | Multiple Sclerosis |