I've had 2 neuros who have given me their e-mail address which I hope I never overuse. New medication things only so far. I have a time thing/rule of thing - OMG!!!!use Judgement and will call if needed. I have Baclofen (sp?) in the house, never needed or used, but PCP insists I have it ready and here if ever needed. I am guilty of not wanting to bother anyone and am trying to change my mindset. I know if I am not concise in E-mail I risk Dr. not paying complete attention. I had an English teacher who said "Cleanliness is not next to Godliness, brevity is" I had nothing but admiration for her.

Kicker, you said what I always think...I don't want to bother anyone. I know, logically, that the neuro is there to be bothered when these things come up.

But I honestly don't understand what to say when I call...do I say, "My spasms are awful again?" Or "I can't stay awake?" Even though I've had spells of spasms in the past that come and go after several weeks, do I call when they return and make me feel miserable?
I don't understand what he's going to be able to do...I'm taking the meds. I stretch (when I remember to). What is he going to be able to do? He knows I have these sxs off and on. So why should I call him to tell him I have them again?

I just don't understand, I guess. It's not like when you're expecting a baby and you begin to spot...these sxs are a part of my illness. He knows that. So I really, truly don't understand why I should call and tell him.
I guess this is the first time I've had a neuro who wants info. The past 2 didn't seem as "concerned", if that's the right term. Not that they didn't care...they seemed to kind of shrug their shoulders like, "eh".
Thanks again, all, for the info and especially the support. I was really down last night. A good night's sleep and a nice shower this morning makes the world bright again

Debbie, I definitley understand what you are feeling. My doctor is one of the ones that shrugs his shoulders. Or his nurse does. If I do call, I then have to wait for her to call back. I am usually at school so then I have to call back again. This goes on for about a week, and then she asks me if I want to try a new med and is so, what med? So I usually avoid calling.

I hope you're feeling better today Deb. Maybe he could give you something for fatigue? I take Nuvigil now (it replaces Provigil) and I can't function without it. If I did have to stop taking it, I'd have to call off my job search because this is what keeps me awake during the day.

I call my neuro when something major is going on. We had an arguement the time before last since I wasn't calling him for major things.

I usually wait a couple of days to make sure it wasn't a push on my stubborn part that caused the symptoms. If not gone or if new, it's a call. If I fall because something wasn't acting right, I call just to let him know.

Hope you feel better.

Call them Debbie, they understand. Let us know what they think.

i agree deb. time to call the dr. he's part of your medical team, of which you're a member. he needs to be kept in the loop. maybe he can make some med changes. something that will help you.

i hope you're called. let us know how you are.