[SallyC]

Maybe we can get a group rate.

I have a feeling that my MS (1st symptoms in 1964), is too old for a cure. I think LDN has been keeping me from progressing in disability (except for my age), for the last 6+ yrs.

If this treatment can do this for you PPMSers and SPMSers, I say go for it. All surgery is dangerous, but certainly not moreso and perhaps less than the DMDs offered.

[kicker]

A group rate which includes good meals!!! I'm (cough- cough) older with old MS that's put me in a chair, Stopping progression is my only hope at this point (or a miraculous great cure and time travel thing!!)

[Aarcyn]

Kicker - how much has your PP progressed lately? Has the slippery slope leveled off at all?

[kicker]

No big leaps or bounds, but maybe baby-steps of progression only evident right now to me. Holidays aren't helping it now or added needs of family in college search.

[gonnamakeit]

Originally Posted by SallyC

Maybe we can get a group rate.


If this treatment can do this for you PPMSers and SPMSers, I say go for it. All surgery is dangerous, but certainly not moreso and perhaps less than the DMDs offered.

I agree with you. Once I see that patients who undergo the procedure no longer have stents floating around their heart, I would be ready to climb on the operating table.

There really is nothing else out there to help most of us.

gmi

[Judy2]

Hi fellow PP and SPMSr's! Have you with the PP variety tried LDN? I know it's not specifically recommended for it, but with no or little side effects, it just might slow down progression as it's done for me -- and Sally (right?).

Another question -- do any of you have severe bladder problems? I've seen the new med, Tovias(?), and wondered if anyone had experience with it? I've been on oxybutynin forever and it doesn't do the job as well as I'd like. It dries out my mouth just great though! Have an appointment with my pcp this Thursday so thought I'd question him about it.

Are you extra tired/fatigued lately? Maybe it's just the thoughts of getting ready for Christmas that are exhausting me -- changing temps too. Depressed, down and disgusted!!! So many community events happening, shopping, etc., and I'm stuck in the house. Tonight I seem to have an "eye headache" on the left side. Sure hope it isn't an indication of things to come. I HATE THIS DISEASE!!!!

[kicker]

Judy,
I want to try LDN. My neuro poo-poos, but a message board mate has given me a name to contact. I used Oxybutyin - it made my mouth a desert but didn't help make me pee less than Vesicare I once took. So switched myself back to Vesicare. I take Amantadine 2X a day for fatigue, tried Provigil which did not help, but everyone so different in meds and what works for them!!