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Old 12-02-2009, 01:56 AM #11
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Hi fellow PP and SPMSr's! Have you with the PP variety tried LDN? I know it's not specifically recommended for it, but with no or little side effects, it just might slow down progression as it's done for me -- and Sally (right?).

Another question -- do any of you have severe bladder problems? I've seen the new med, Tovias(?), and wondered if anyone had experience with it? I've been on oxybutynin forever and it doesn't do the job as well as I'd like. It dries out my mouth just great though! Have an appointment with my pcp this Thursday so thought I'd question him about it.

Are you extra tired/fatigued lately? Maybe it's just the thoughts of getting ready for Christmas that are exhausting me -- changing temps too. Depressed, down and disgusted!!! So many community events happening, shopping, etc., and I'm stuck in the house. Tonight I seem to have an "eye headache" on the left side. Sure hope it isn't an indication of things to come. I HATE THIS DISEASE!!!!
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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