[Judy2]

Thanks for your thoughts, Kicker!! Yep, this lousy disease has to be so different for everybody that we all have to find what works best for us. And....I didn't go to my doctor Thursday after all. This darn weather with the rain, cold, rain, more rain, etc.....has me so sore and stiff, there was no way I could imagine getting into and out of a car twice besides just getting ready to go! Come on Docs......bring back the housecalls please!!!

Come out wherever you are PP and SPMS people!!!! Most everybody can't be RRMS!! That's just not fair!!!

[kicker]

Judy, I am sleeping more when I can, DH, morning lark that he is, let me sleep tp 7:45 today!! He's up at 5. Sometimes I practice in the mirror saying "your Honor, that's why I had to kill him" 8-). I hope it's the thought of getting ready for Christmas making me tired, not progression. Ide hit a level place but feel more cross-eyed lately, tired and turning in bed 180 degrees is harder. It's like the cotton underwear is Velcro on cotton sheet. Nylon makes it easier. I'll buy a satin fitted sheet to try. I wear Poise pads 24/7 now, so cotton undies really don't matter. I sleep good but need to turn to get pressure off limbs.

[SallyC]

There are probably more PP & SP peeps out here, who are no longer having exacerbations, but It's a hard thing to admit, especially when the Docs are DXing us RRMS, so they can fill us full of their fav DMD.

[kicker]

Sally, think you're right. PP and SP are scarey. Like "abandon ye all hope".
It's a different can of worms. I pushed me (and DH) a little further tonight, got to buy some stocking stuffers and diffusers(scents) I wanted. I needto speak up for things.

[Aarcyn]

Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.

[mrsD]

Originally Posted by Aarcyn

Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.

We found the mattress toppers very effective. And get a good one that is at least 2 in thick. They just go on top of your mattress and provide alot of pressure relief.

I have heard that the full Tempurpedic can be hard to move around in and also hard to get out of. The foam material also is HOT, which some do not like at all!

[barb02]

I have a fake tempur --pedic (still cost about $1500), and it does take some effort to turn over. It also gets rather hot in the spring/summer. I bought it about 3 months prior to first ms flare. My sis has an authentic one, and she loved it when she was pregnant. She says you do not feel the need to roll over much. But it too is hot.

[gonnamakeit]

Originally Posted by mrsD

We found the mattress toppers very effective. And get a good one that is at least 2 in thick. They just go on top of your mattress and provide alot of pressure relief.

This is very true. We have bought many of the mattress toppers throughout the years when we were staying in hotels or in between moves and not in our own beds.

The last one I bought is what I have cut up to use in my manual wheel chair. I put 4 layers in the seat and it is so much more comfortable that any of the wc cushions I have sat on.

gmi

[gonnamakeit]

Originally Posted by Aarcyn

Kicker - What kind of mattress do you have?

We want a Tempur-pedic but that is on the "wish list" along with a dishwasher! I am not sure how easy it is to turn around in the bed but there is a 90 day guarantee.

My problem is where to put my "old" mattress when trying the tempur-pedic.

If that tempur-pedic is a foam mattress, you need to give it a try first. I have a horrible time turning around or getting out of one.

My husband had to grab my legs and pull me out of those beds every time we hit one at a hotel.

I wouldn't have one in my house if it were given to me.

gmi

[poochie]

How on earth do you know if it is SPMS, when the neuro can't even tell you, I've been on LDN for 5 years now and I don't have anymore attacks, but I think I have progressed somewhat, I have never fully recovered from the first attack, which left me with partial paralysis, 15 years ago. It's so hard to tell about this disease.