[legzzalot]

Question for the PPMSers. How much did you go through before the official PPMS dx?

I ask, as I am stuck in limbo land. sx started in aug of 2007... been in continual "flare" since with a 3 month reprieve, where the majority of sx (but not all) went away. MRI proved that copaxone actually made it worse. Horrible reactions to Avonex, now have 3 TY infusions under my belt. 14 MRIs since oct of 07 and every single one of them has progressing/ new lesions. Doc says I am no longer considered to have a remitting form of MS. And it is progressing faster than she has ever seen... yada yada...

BUT, she will not give me an official PPMS dx, nor an SPMS dx.... so I feel stuck somewhere in the land of the lost here. I get that a PPMS dx would pretty much kill any hopes with my insurance co, but not knowing is just as annoying. SO my question is, when do they call it??