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Old 11-16-2010, 12:13 PM #1
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My neurologist has actually gotten nicer as he realizes there's not a dang thing he can do for me and my PPMS. We no longer play the get a MRI game, both asking "why." Last time I saw him he said see you in a year unless you need me. We no longer do the every 6 months game. He never takes longer than 12 hours to answer my e-mails, is open to providing me with WC prescription, pain medications, letters for house delivery of mail (My mailbox is 800 feet away down a hilly drive.) He does not say it, but we both know there is nothing he can do but treat problems if they arise. Rebif, Novantrone, generic/compounded fampridine have been tried with no success. Last time I saw him I said it must get hard treating MS people (he is a MS Specialist Neurologist), no one gets better". He cough/laughed and didn't say anything. No PT for me, My job is to use my time well NOW.
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Old 11-16-2010, 01:02 PM #2
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Hi Leggs, good to hear from you.

I am so sorry for all your troubles....I hope you get all your ducks in a row, soon, without too much QuAcKiNg...
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Old 11-16-2010, 01:05 PM #3
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It's nice that you have a good rapport with your DOC. Too bad he doesn't have all the answers.

Keep it moving, Dear..
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Old 12-19-2010, 12:27 PM #4
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PRMS... and can't find anyone else with it. Is it ok if I join this thread???
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Old 12-19-2010, 01:19 PM #5
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Quote:
Originally Posted by Noidy View Post
PRMS... and can't find anyone else with it. Is it ok if I join this thread???
Yep, you fit right in with us oddballs..
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Old 12-19-2010, 01:28 PM #6
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Thanks Sally. It feels great to be welcomed. You all are so wonderful here.
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Old 01-11-2011, 09:11 AM #7
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hi noidy! welcome to crazy town...population....us!
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