[nancymarie]

Hi

My husband who is 61 has PPMS dx in 2000, with symptoms since 1995. It started out with tingling in his big toe which gradually progressed to a limp in his right leg. He progressed very slowly and only went in a wc this year after 14 years since the tingling started. His arms and hands are unaffected and he can still stand for short periods and transfer alone. He self-caths due to urine retention and to prevent utis.

I know that even PPMS is variable and outcomes can range but I worry alot about how this is all going to end.

Does anybody know of anyone with PPMS who had it for years and years and didn't end up bedridden?

My husband doesn't think about the future and I guess he's smart. But I worry alot.

thanks for any responses.

N