I think people are always going to describe their symptoms on forums such as these, either out of curiosity as to whether other people get it, or out of concern for what might be causing it, or simply to share the latest weirdness or problem.

Anyone with a tendency to "get" symptoms from the Internet or to interpret their symptoms as belonging to a particular disease is going to do it anyway. So many descriptions and attributions of symptoms can be found all over the Internet--there's no stopping the tide.

I don't think that withholding descriptions of symptoms will save anyone from themselves. There's too much out there already. We can't be responsible for how people might use our posts.

My opinion--YMMV! (Your mileage may vary.)

Nancy T.

I see your point too, Nancy.

I have been (or am) on several forums and each has it's own feel. Some forums literally chew up & spit out most new members. Other forums seem to exist for the sheer numbers, and/or almost capitalize on the vulnerabilities of new people, regardless of their dx (or lack thereof).

This forum has grown so much in the past few months, so I think it is still taking shape. Until it finds it's niche, there are likely to be interim decisions that don't necessarily pan out exactly the same way in the longer run.

Cherie

I came to this late, Cherie and Koala. I went back and read Catch's thread and am now up to speed. I do agree that we should not make a formal list of symptoms here for the perusal of lurkers and wannabes, but I think you might be overreacting to this particular thread.

We will always want to talk to each other and compare notes, so to speak, and we don't want to discourage that. It's too much a part of the support we give each other here.

This forum has a pretty nice "free speech" policy, as long as it does not offend, and we don't want to become too restrictive, as other forums, where we have run screaming from, have become.

So lets cool it a little OK..

Yep, agree with you on all that too, Sally.

It was likely the way I wrote my original reply which motivated Koala to question it . . . and I saw her point.

Cherie

well said Sally i agree, loosen up, another site tried it and if I am not mistaken most of those folks are here now. when a lot of us have cog fog and cant remember last nights dinner, its easy to see how some of us differ in how we describe things, its how they are perceived by that INDIVIUAL, we are all different and the illness hits us all differently as do the meds and treatments and our descriptions



peace

Numb with feeling is exactly what I'd call it too.

I'm a bit taken back on this, and the other thread. It's kind of like being on the playground and not being with the popular crowd...not allowed to play in the sand box.

How many had a dx right away?

How many did it take years?

To assume that those in limbo are 'wanna be's' is outragouse, at least to me. I wanna be nothing! I didn't ASK for ANY of this!

Don't think for a minute that those of you who don't want limbo'ers here....DON'T NOTICE. WE NOTICE. There is a handful here who are not 'prejudice' and for them I'm grateful. It angers me! I'm a part of this forum...supporting, hugging, understanding.....trying to be a support when I can, and then to talk about me and others here as if we are wanna be's is hurtful and mean. Some of the arrogance of it all just makes me

Maybe I've over stayed my welcome here.

BTW: I call it numbers!

PS: I've NEVER gotten a sx because I read it here...or anywhere! EVER!

GJ, I hope my post didn't lead you to believe, in any way, that I consider Limbolanders as wannabes. It never entered my mind. I personally, consider all LLs as PwMS, or, if not MS, then another similar illness.

I dont buy, for one second, that yours and other's symptoms are caused by stress. I do believe that stress does bring on MS symptoms, though. I think that, one day, most of you will be DX with MS or a Similar disease.

I think if there are those here who do not accept LLs as part of our supportive, loving Family, should go back from where they came. I don't really think that is what was meant, though, greenjeans. It may have just looked that way to you.

Anyway, if there is any doubt in your mind, you are as welcome here as the flowers in May. I always look forward to your supportive and fun posts. Keep em coming.

Thank you!
This is REALLY hard for us in limbo that don't want it to be MS but all (or most) of the SX are point that way. I even have Dr.'s and others that have MS (that know me in person) that say it sure seams like MS to them also.

We come here to find support derring this hard time and some time get jumped on how something doesn't look like MS to those that have a DX but than turn around and say that they have THE SAME THING a week later to someone else on the board that has a DX.

And to agree with Greenjeans last line, "PS: I've NEVER gotten a sx because I read it here...or anywhere! EVER!", sometime we don't know that a SX is a MS SX until we see others talking about it, we see those with a DX do the same thing. "I thought I was the only one that had that", "I didn't know that was from MS". Ring a bell.

Bottom line, do jump on the UN-DX so fast. There maybe some here that DO want MS and I feel very sorry for them. But I don't think you can tell just by there post if they are a Want-to be" or a limboer that feels it must be MS because nothing else adds up as well as MS.

There are times I walk away from the board in tears and ask my self why I keep coming back. And my answer is "Because I can't even find a good Dr. that will listen to me".

If there are any typos, I'm sorry, I'm too upset to reread my post to see if everything sounds right. I'm not here to prove I'm NOT a wanna have MSer. I'm here to find the support I need until I do find out what I have. And I have SO much history that I haven't posted on the board so just because I haven't posted it doesn't mean I have tried it, had it, gotten over it, or even never had it, never tried it, etc. Someone said in another post to me that I should try Lyrica or Neurontin, well I have tried both. I didn't wake up last month thinking "I want to have MS". I have been dealing with odd things for at least 14 years and the past 4 years it sure seamed like there more than Fibro going on inside of me.