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Old 11-22-2009, 01:30 PM #1
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Why are researchers so adamantly against anything that doesn't fit their criteria for the disease?
The almighty dollar.
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Old 11-22-2009, 03:04 PM #2
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The almighty dollar.
I totally agree. That's why LDN hasn't been explored any more than it has. There's no $$ in it for anyone.
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Old 11-22-2009, 06:18 PM #3
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I emailed the link to my neuro this morning and bless his heart he emailed me back a few minutes ago, thought it was interesting and would be a while in the testing phases to get approval in the states but then asked if I wanted to get some vascular studies done...
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Old 11-22-2009, 06:23 PM #4
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I emailed the link to my neuro this morning and bless his heart he emailed me back a few minutes ago, thought it was interesting and would be a while in the testing phases to get approval in the states but then asked if I wanted to get some vascular studies done...
Woo! Go for it NaeNae and keep us posted, as soon of us won't be so fortunate with our doctors going ahead and getting us this testing.
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Old 11-22-2009, 07:54 PM #5
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I emailed the link to my neuro this morning and bless his heart he emailed me back a few minutes ago, thought it was interesting and would be a while in the testing phases to get approval in the states but then asked if I wanted to get some vascular studies done...

If your vascular studies show blockages in the jugular veins and/or the azygos veins, then you shouldn't have to wait for these studies to be approved, to have them unblocked!!!!!!!
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Old 11-23-2009, 06:45 AM #6
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There is more on this research and a Q&A session at www.ctv.ca/w5

For those who may be interested, it mentions some people starting research and looking for patients for clinical studies:

"Dr. Zivadinov in Buffalo is now starting a new study, recruiting 1,600 adults and 100 children, half of them MS patients. He plans to use ultrasound and MRI scans to confirm if those with MS also have CCSVI and if their family members have the abnormalities too.

Prof. Mark Haake, a neuro-imaging scientist at McMaster University and Wayne State University in Detroit is also intrigued by Zamboni's findings...Haake too is initiating a study, asking neurological centres across North America and Europe to take some extra MRI scans of the neck and upper chest of MS patients."

I so hope there is something in this for all you wonderful people.

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Old 11-23-2009, 09:32 AM #7
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If your vascular studies show blockages in the jugular veins and/or the azygos veins, then you shouldn't have to wait for these studies to be approved, to have them unblocked!!!!!!!
What's kind of amazing here is that 100% of Zamboni's 118 MS patients all had narrowing of the jugular vein and all of them showed symptom improvement after the surgery. His work could very well stand the MS world of medicine on its head!

Harry
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Old 11-27-2009, 07:19 AM #8
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I was really pleased to hear that the Canadian MS Society is not going to drag its feet on this. Effective 1 December, extra research money is going to be made available to study Liberation Therapy.

Each year, instead of Christmas exchanging gifts, hubby and I make a donation to charity. This year our cheque is going to the MS society - along with the prayer that this really is the breakthrough that is going to change so many lives for good.

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Old 11-27-2009, 09:03 AM #9
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I don't think it's that simple. This theory does not account for genetics, lots North, less South (geographic factors) and other things. May be a by-product but doubt answer is this simple. All surgery is dangerous, already there are deaths with shunt displacement/ movement. I'm going to see what happens. While I always have a little hope on these things, I've seen too many become nothing. I predict this will overwhelmingly effective for some, destructive or non-effective for others.
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