Welcome Charley, nice to have you with us.

Yes spasms are painful and so is nerve pain, Doc..

Hi Charley and welcome to the group! Isn't it fun when people (especially doctors) seem to think MS is painless.

When my first neurologist said "I think your MS is benign"

Hey! so was mine! What a coincidence! We both have doctors who like to BS their patients!

There is no such thing as "benign MS". MS does what it wants, when it wants and it doesnt listen to arrogant neuros who still believe there's such a thing as "benign MS".

My first Neuro said the same thing to me! What the heck is "benign MS" anyway? I can definitely tell him that it is not benign.....in any way, shape or form.

You know, since doctors and the medical profession seem to have such a hard time relating to people with MS I think we should charge them to treat us since they are getting an education while trying to figure us out!

Very few neuros are charming are they? I had one and he moved away, dang it. My current one may need a tree surgeon to help remove a stick.....

not dxed so far... but...

dumbest comment from a doctor about my sxs...

I just got done going over with a new neuro info on family.. that I have five kids, and before the last three also had lost a baby full term... (this added to tweek how dumb the comment was)

so we went over my sxs, she said the memory is adult ADD (which a neuropysch did the testing did not say that... she asked if been tested for MS)

then said my balance is inner ear issues... (nope seen ENT.. who thought part of neurological nature)

then said all the rest of sxs... numb/tingling, pain etc.. is anxiety...

so when I am pregnant I do not get any of these sxs....

so I asked her when preggo does adult ADD or inner ear issues go away.. she said "not sure"

I said cause it seems to clear when preggo...

then the kicker here it is... I asked does sxs of anxiety that you say... do those go away when your pregnant... as they do when I am pregnant...

"yes, they would with you, as you are so happy when pregnant my dear"

yep that is what she said.... wanted to cry but thought she then would say I am a nut that needs anti depressants...

I could not believe that not knowing me at all... as I am happy go lucky preggo or not... plus that with losing a child full term.. the three after I am sure even if did not feel ancy must have been somewhat! that would cause issues....

anyhow that is so dumb... nope did not go back to that neuro office!

hugss all, sarah

And today... the award goes to my ex for the stupidest comment....

"well i hope you guys move back down here (Richmond) before you are wheelchair bound. I mean just meeting you halfway is a hike for me."


I am so sorry my MS and the fact that you chose not to marry me after we were together for 4 years and I gave birth to your only child is such an inconvenience for you. I know for a man who DRIVES for a living, that making that extra 40 mile trip every other weekend is just waaaaaay too hard. Maybe we should reconsider this visitation thing so you only have to make the trip once a year?

Geeze, that was overly mean and nasty of him. I'll be mad with you.

Its all good he brought DD to the santa breakfast this morning. we made a "special" plate just for him! Hey, only one day a year do I have access to the man's food, his comment yesterday was a bad idea.