[legzzalot]

So I still can't pee! Been fighting this thing since nov... they thought kidney stones, then they thought UTI, then they thought "I dunno, here have an antibiotic and some Vicoden".


I finally cried uncle and made an appt with the urologist.... without reading my history and just going over my symptoms...he thinks I might have MS! LOL ya think?!?!?!

Bladder is refusing to empty, going in for Urodynamics testing on the 28th. This should be interesting. He thinks the signal is getting lost from my brain somewhere in my lumbar area and not quite making it to the bladder...but we'll put you through a series of uncomfortable testing to confirm this suspicion!

[kicker]

I've been to a urologist, my PCP sent me because I do have MS and she worries. Not fun, but not terrible. Never hurt but uncomfortable in that thay filled my bladder to see capacity, had to pee in a portable toilet thing that looked like something in a geriatric home. Dignified? Well, no, but over now. Good luck. I worry about going from too often to retaining liquid (Means not peeing).

[SallyC]

So sorry, Legz. I hope the Uro can help you find relief.

[legzzalot]

ha! yeah they plan on making my bladder a balloon too, after I pee into a funnel with a computer hooked to it to check my speed/flow and then I may or may not have to have a dye injested and an xray machine brought in for another test... and there are two others that I may or may not need....

I just thought it was funny that I was the only person in the entire office under the age of 55. The doc was late bc he got tied up in a surgery so he rushes in without looking at all 5 pages I filled out and starts going over my sx.

And he got the saddest most serious look on his face when he says to me, "I'm sorry to have to ask you this, but have you ever been tested for MS?"

Of course my response was priceless "And I am sorry to ask YOU doc, but do you normally try to diagnose a problem without first glancing at a patient's medical history?"

he got me back though... as he was doing the ever so uncomfortable up close and personal exam... he says "relax, it's just me. I'm a Doctor!"

If only i had a dollar for everytime I heard that one!

[kicker]

You know, after mentally reviewing all my visits to the gyno, mammograms, childbirth, etc., I can't but feel a little vindicated DH at least had a prostate exam. Petty, yes, Untruthful, no. Good luck Legz. Good for you for being truthful with doctor.

[legzzalot]

So I went with my new challenge to the chiro today. He presses one spot on my spine and I tell you, it made me cry it hurt so bad. This apparently is where the nerves that lead to your bladder lie. He massages and adjusts and wow that REALLY hurts!

Then I get home and start reading up on the "flaccid neurogenic bladder" that the doc thinks I have. And I am reading the different types, such as Urinary Incontinence where the bladder leaks caused by spasms. And to treat this type, they recommend anti spastic medication.


So I am wondering why I am the only one questioning if the lack of performance with my bladder may be caused by the antispastic (Baclofen) medication that I am taking daily to stop my uterus from going bonkers.

[Lady]

Hi Leggs,
I have known people who had to self-cath because of Baclofen. Maybe lower your dosage? Are you on LDN? My bladder behaves nicely on LDN and bowels too.

I had the Urodynamics testing. It just came back Neurogenic bladder, Duh! Like I knew that. When in a relapse I get drip leakage, but no more since LDN.

I still have urgency and frequency, but no hesitation, retention or leakage when bladder won't empty correctly or completely.

Are you in a relapse? I hope you feel better real soon.

BTW, I like female Urologists or even a male Gyno-Urologist. The male one I went to didn't really understand me too much. He is used to old people and men, not MS or women that much.

Men have the prostrate problem, so male Urologists see them more often than younger females. Older females have dropped bladders, etc.

My male Urologist had a woman in the hospital do the test. Some doctors do it in their office suite but mostly for men, which I understand.

[legzzalot]

Relapse? Unfortuantely I live in a constant state of relapse. I am no longer considered RRMS, since it has not remitted in 16 months. I was actually happy with this doc once we went over everything, and he recommended trying chiropractic to try to move the disc off the nerve. And with the pain I think he may be on target with that one. But if my choices are to live with uterus spasms or self cathing, I will choose to skip the Baclofen.

Just started TY last month, right after all of this started. Won't know anything definite until the 28th, so I will try not to stress over it. It just annoys me that I can't seem to get ALL of the docs on the same page.

Good news is I LOVE my chiro.. even though he hurt me yesterday. He is the only one that has been able to stop some of the pain.

[ewizabeth]

I've had that on and off Legzz. If you get the urge to go, GO! Don't wait! Also, no hovering!! Drink lots of water and take some cranberry capsules twice a day. (These tips helped me a lot.)

I don't feel/or notice when my bladder is full sometimes. Try to pay attention to your bladder. (Right now mine is full so better get in there.)

I have self-cath supplies and I was unsuccessful in using them. DOH!! If you need to do it once in awhile, have a nurse train you!