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#31 | |||
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Grand Magnate
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craig,
![]() i'm truly sorry for the situation you're both in. you are doing the smart thing to work on your estate planning. since your drs have let you go i'm wondering if contacting a hospice might help you and your family. your dr can write an order for hospice care. and that doesn't mean you're going to die on a specific date. they can begin caregiving at least 6 mos prior, maybe even more. i know that hospice care is so excellent. please let us know. my thought and prayers are going to you and your family.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | Dejibo (03-10-2010) |
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#32 | |||
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Magnate
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So, there is no PT or anything or OT, for your speech, or issues?? just curious... and the doctor did not want to schedule any followups just kind of checking in... heck a mental health check even..oohhh wait or do you have a MD too? and just neuro do not need to see you... just all sounds weird...
we hope to hear from you soon, you take care and sorry for the condition, hugsss,sarah
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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"Thanks for this!" says: | Dejibo (03-10-2010) |
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#33 | |||
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Magnate
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Glad you are being smart on the money end, yes in case of nursing home stuff... hugs, sarah
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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"Thanks for this!" says: | Dejibo (03-10-2010) |
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#34 | |||
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In Remembrance
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Nice to hear from you Craig and happy you are still plugging away, one day at a time. I guess DW has to do the same thing.
I wish you both well and I hope you keep in closer touch. ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (03-11-2010) |
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#35 | |||
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Magnate
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Hi Craig!
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__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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