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Old 03-10-2010, 05:22 PM #31
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craig,
to you and your wife.

i'm truly sorry for the situation you're both in. you are doing the smart thing to work on your estate planning.

since your drs have let you go i'm wondering if contacting a hospice might help you and your family. your dr can write an order for hospice care. and that doesn't mean you're going to die on a specific date. they can begin caregiving at least 6 mos prior, maybe even more.

i know that hospice care is so excellent. please let us know.
my thought and prayers are going to you and your family.
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Old 03-10-2010, 05:31 PM #32
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So, there is no PT or anything or OT, for your speech, or issues?? just curious... and the doctor did not want to schedule any followups just kind of checking in... heck a mental health check even..oohhh wait or do you have a MD too? and just neuro do not need to see you... just all sounds weird...

we hope to hear from you soon, you take care and sorry for the condition, hugsss,sarah
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Old 03-10-2010, 05:33 PM #33
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Glad you are being smart on the money end, yes in case of nursing home stuff... hugs, sarah
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Old 03-10-2010, 06:17 PM #34
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Nice to hear from you Craig and happy you are still plugging away, one day at a time. I guess DW has to do the same thing.

I wish you both well and I hope you keep in closer touch.
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Old 03-11-2010, 12:31 PM #35
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Hi Craig! Good to see you!
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
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Copaxone 05/05-12/06
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Tysabri 05/25/07-present
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I'm doing alright and making good grades,
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