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Old 01-01-2010, 03:12 PM #31
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My neuro is on the medical advisory board for the NMSS so I trust him when he suggests things. Honestly your neuro sounds like a bit of an arrogant jerk.
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Old 01-01-2010, 04:24 PM #32
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Quote:
Originally Posted by hollym View Post
Honestly your neuro sounds like a bit of an arrogant jerk.
Yep - I have to agree with you, Holly. I don't think I'll be going back to him. I want to call the office Monday and see what I have to do in order to get a complete copy of my records. It's hard enough having this disease. Having to see a Neuro who's got an attitude like his doesn't help.

He hasn't done anything for me that my PCP can't do. I think I'll just stick with him. He's nice.
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Old 01-01-2010, 07:37 PM #33
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Sorry to hear about your ON, Kelly.

I understand how you feel about your neuro; mine also prefers to deal only with the "brain" stuff, but suprisingly he decreased the dosage of clonidine (a blood pressure medication used also for bladder control) I was taking because my blood pressure was SO low.

I agree with the others that you should try alternate avenues for prompt attention to the ON. Let us know how you are progressing.
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Old 01-01-2010, 10:41 PM #34
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Kelly, when I had a Neuro, my PCP wouldn't do anything to step on Neuro's toes. As soon as I dropped said Neuro, PCP became my angel. He will do anything to make me more comfortable with MS and keeps me healthy otherwise.

I don't think you'll be sorry...if so, you can always ask your PCP to recommend another Neuro.

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Old 01-02-2010, 09:53 AM #35
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no advice, just hugs
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Old 01-03-2010, 02:02 AM #36
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I know how worried you probably are that you're not getting IVSM for your ON, but please know that I've had ON umpteen times and I've only ever been given IV cortisone once.

It will clear up by itself, and I am proof of that.

Sending hugs and hoping that your vision starts to clear soon.
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Old 01-03-2010, 04:59 AM #37
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I know how worried you probably are that you're not getting IVSM for your ON, but please know that I've had ON umpteen times and I've only ever been given IV cortisone once.

It will clear up by itself, and I am proof of that.

Sending hugs and hoping that your vision starts to clear soon.

Thanks so much for the reassurance. Everything I've read about it states what you just said....that it will clear up on its own. For that I'm grateful. And, to look at the bright side, I feel like I'm saving my bones from the terrible side effects of the steroids. Luckily, I'm home and don't have to go out to work so I can rest my eyes as much as possible. Plus, I didn't have IVSM when I had that terrible double vision four years ago and it resolved itself completely.

It always seems worse after I've slept for a while and when I'm just waking up and this morning it actually seems a little better. Maybe it's just my wishful thinking....who knows?!
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