Do you have holes in your head?

AYUP~ AND, I'm only saying it once this time! (grin)

MS trolls ruin everything. Aw Dej

thought DM was checking if I was paying attention... or to make me feel lost reading three...lol

dej, take care and good luck, look forward to when it clears so you can get that trip!! hugsssss,sarah

IVSM usualy take 50 % of my flair away in 2 days. Rock On

my MS center has a 24/10/14 rule.

You must have the symptom for at least 24 hours straight. no breaks in it.

You have 10 days to start IVSM. After ten days the rate of recovery and the relief of symptoms drops back to equal of those that didnt take IVSM.

you have up to 14 days to interviene with some treatments. be it pills, or iv or what ever. after 14 days, your body is going to be over the hump of inflammation, and or flare, and from 14 days forward, its all about recovery. IVSM wont help the recovery then, nor will oral steroids. you should be seeing an improvement in sx or a recovery start. if not, they will repeat an MRI.

I hate this disease! I really do. it has taken so many things from me.

They have protocol, and they follow it. I see that as a positive. It may not help everybody everytime, but it's always better than flying by the seat of their pants, like so many neuros/clinics seem to do.

Rest, relax and recover. All the nonsense you had going on probably didn't help. I hope that keeps calm for you.

Sorry to hear. Maybe you could still go and just take it easy.
I'm still very new at this ms thing. If you don't mind me asking, how do they know if you are "too far into a flar?"
Very best wishes to you.
I know how frustrating this is. I was on a cruise last June when ON hit. I said to xxxxx with it had just kept going.

Cordelia

Dej,
when you start into a flare up, are the sxs that noticeable to you?
I am really having difficulty understanding this whole topic.
For instance, my eye hurt when I moved it on Saturday...several times. A stabbing pain underneath it, kind of in the muscle, I guess. Then, later that day, the stabbing went to my upper lip and chin. then back to the eye. Same thing the next day. Then disappeared.
I don't understand how you are supposed to pay attention to the sxs...do you write it all down? Do you keep a daily sxs journal?
I am so confused...really I am

Anyway, I sure hope you are feeling a bit better, dear

NO! its not, and it is frustrating to me! I feel like everyone else wakes up, gets out of bed and says "oh, my X hurts, and I am XYZ, I am in a flare!" its not that cut and dry for me. I have vague silly things that lead up to suspcisions. like when watching TV for a longer period of time, I would get a split in my vision, but when I looked away for a min, or did something else it went away. The MS center says a flare is a sx that last 24 hours with NO breaks in the sx....so, I had a break in the sx...its not a flare? or is it?

I have this sense of high anxiety, and panic attacks, but they are not my normal attacks! its weird, its normal for me to have anxiety, but this is a change in what is normal for me. It doesnt last 24 hours, so the books say...no flare. my feet are burning lately. like standing on hot pavement. That shift your feet back and forth kinda burn, but if I sit down, they stop.

Went to the big city hospital and gave them my list of sx. They say "its a big flare!" well....how the heckpie and I supposed to know this? They do reccomend keeping a journal. they do reccomend calling them to discuss it if I feel out of the ordinary.

I dont know, I find this whole disease to be confusing and inconvienent. Can I swap it out please? nothing is "by the book" and what your sx are, may be completely different than mine! You can take interferons and get depressed, and I take them with no sx, oh unless you count the extremely high liver enzymes! not a single sx that led me to believe I was in danger. Nothing fits! nothing is like the books say its supposed to be! What happens to Suzy doesnt happen to me, and half of what happens to Cindy is bizaare in my world. I am confused, with enough cog fog to shut down the airport, and know they want me to keep track?

Im dizzy when I even start to think of this stupid disease.

Best answer. Keep a journal. If its out of the ordinary for you, call your MS center or the nurse from the drug maker that you use. The Shared solution or beta nurses are amazing! full of good answers. Past that, Im lost too.