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Yep, its a flare

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Old 01-06-2010, 09:19 PM #1
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Default Yep, its a flare
went to the big city hospital for my six month follow up. Dragged out my laundry list of complaints, and was informed that I am indeed in a flare. I was offered IVSM if I wanted it, but since I am so far into the flare I was told it wouldnt make a huge difference in recovery if I said no. I declined. No wonder I am anxious, tense, and itchy. oh, btw, this means my trip in ONE WEEK is now postponed! I am so mad Now I get to stay home, and have the DH play the "i told you so" card. I was at the exit! I was almost gone! I moved my appointment up so I wouldnt miss out before I went away too.

I just wanna cry.
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Old 01-06-2010, 09:28 PM #2
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Sorry to hear about the flare and the missed trip. Hang in there!
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Old 01-06-2010, 09:35 PM #3
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(((((((((DEJ))))))))
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Old 01-06-2010, 11:58 PM #4
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Sorry you're having to postpone your trip, Dej. Get better soon so you can really enjoy your getaway!
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Old 01-07-2010, 03:46 AM #5
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What an absolute cr@p situation. I'm sorry. I know you really needed that trip.
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Old 01-07-2010, 09:23 AM #6
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How horrible that you're not feeling well and in a flare and that you are missing your trip because of it. (((hugs)))
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Old 01-10-2010, 01:46 AM #7
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Quote:
Originally Posted by Dejibo View Post
went to the big city hospital for my six month follow up. Dragged out my laundry list of complaints, and was informed that I am indeed in a flare. I was offered IVSM if I wanted it, but since I am so far into the flare I was told it wouldnt make a huge difference in recovery if I said no. I declined. No wonder I am anxious, tense, and itchy. oh, btw, this means my trip in ONE WEEK is now postponed! I am so mad Now I get to stay home, and have the DH play the "i told you so" card. I was at the exit! I was almost gone! I moved my appointment up so I wouldnt miss out before I went away too.

I just wanna cry.
IVSM usualy take 50 % of my flair away in 2 days. Rock On
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Old 01-10-2010, 10:30 AM #8
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my MS center has a 24/10/14 rule.

You must have the symptom for at least 24 hours straight. no breaks in it.

You have 10 days to start IVSM. After ten days the rate of recovery and the relief of symptoms drops back to equal of those that didnt take IVSM.

you have up to 14 days to interviene with some treatments. be it pills, or iv or what ever. after 14 days, your body is going to be over the hump of inflammation, and or flare, and from 14 days forward, its all about recovery. IVSM wont help the recovery then, nor will oral steroids. you should be seeing an improvement in sx or a recovery start. if not, they will repeat an MRI.

I hate this disease! I really do. it has taken so many things from me.
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Old 01-10-2010, 12:15 PM #9
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They have protocol, and they follow it. I see that as a positive. It may not help everybody everytime, but it's always better than flying by the seat of their pants, like so many neuros/clinics seem to do.

Rest, relax and recover. All the nonsense you had going on probably didn't help. I hope that keeps calm for you.

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