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Baclofen Pump?

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Old 01-08-2010, 08:24 AM #1
DavidT DavidT is offline
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I have had mine for almost 2 years. I love it. I couldn't walk, but I had bad spasms. I still can't walk but my spasms are under control. I don't even know I have it. You don't feel drugged at all. I have to get mine adjusted every so often. It's very easy for them to do. I think you would be very happy with it.
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Old 01-08-2010, 02:25 PM #2
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I have had mine for almost 2 years. I love it. I couldn't walk, but I had bad spasms. I still can't walk but my spasms are under control. I don't even know I have it. You don't feel drugged at all. I have to get mine adjusted every so often. It's very easy for them to do. I think you would be very happy with it.
That's very encouraging to hear. It's the kind of feedback I was looking for. If you go to utube and type in baclofen pump you can see some people's videos of before and after. There are some pretty amazing results with people not being able to walk before and then being able to walk. That wasn't the most likely scenario for me, so I was more concerned with possible side effect. I appreciate you answering that for me.
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Old 01-12-2010, 04:48 PM #3
lindalulu lindalulu is offline
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Originally Posted by DavidT View Post
I have had mine for almost 2 years. I love it. I couldn't walk, but I had bad spasms. I still can't walk but my spasms are under control. I don't even know I have it. You don't feel drugged at all. I have to get mine adjusted every so often. It's very easy for them to do. I think you would be very happy with it.
Do you know anyone that has had success with T.B.I.?? My daughter 19, is going for the trial in two weeks, can you still do stem cell if you have a baclofen pump? Thanks, if you do not know, pass this on and maybe I will find someone that has had both. How long did you wait after the trial to have the pump put in? Did you hear negative things about it, or it was not affective scarring you to make a decision right away? Thanks again
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Old 01-13-2010, 09:21 AM #4
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I don't know anyone with T.B.I. who has one. I have read that it helps though. I have also read that having a baclofen pump does not affect having stem cell treatment. I was scheduled for surgery after I passed my test. It was only a few days.
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Old 01-13-2010, 02:45 PM #5
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Do you know anyone that has had success with T.B.I.?? My daughter 19, is going for the trial in two weeks, can you still do stem cell if you have a baclofen pump? Thanks, if you do not know, pass this on and maybe I will find someone that has had both. How long did you wait after the trial to have the pump put in? Did you hear negative things about it, or it was not affective scarring you to make a decision right away? Thanks again
I have TBI and that's why they are going to be putting in the pump.
Like I said in the original post, I had the trial on the 2nd of Dec and I have my pre-op appt on Jan. 29th. From what I've read, the pump has no bearing on stem cell treatments. I've seen videos of Donny Winn on youtube, Donny had a severe TBI and what the pump has done for him is nothing short of miraculous. You really should go to youtube and put in his name and watch some of his vids.
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