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#1 | ||
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Member
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I'm taking both baclofen for spasms and (I forget) for nerve pain. I'm also on high dosage of antiDs. I've been on the ADs for many years, so I'm used to the level of forgetfulness they cause. With the two new meds my memory is impaired. When cog fog hits I'm in big trouble.
I am a secretary to the Senior Principal of a law firm. It's a demanding job, requiring a sharp mind. My boss notices my memory lapses and I am worried. I want to explain to him that its the meds I take (and I don't take them even every day), but I'm afraid to open that can of worms. I spoke to our new office administrator (a great 25 year old girl, but lacking in experience) and she had no advice as to when, or even if, I need to speak to my boss about it. I set reminders on my computer, have sticky notes everywhere, never go anywhere without a pen and pad, in case any one stops me with something I have to handle, but I still forget things: my notes are insufficient, I forget to set my reminder, etc. How should I handle this? Any input? Of course I really need my job.
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Relax--It only hurts until you die . I'm still walking upright and six feet above ground. . |
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#2 | |||
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Magnate
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I don't have any suggestions that will help. I just wanted you to know I feel for you!
I had the cog garbage when I started the baclofen, but it is cut by the provigil I take to fight fatigue. One of the side effects from the provigil is it makes me "clearer" and more with it cognitively, so one balances out the other. It may not work for everyone in that way but it works for me. (...then I do too much and get more spasms and have to take more baclofen and get tired and take more provigil...)
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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#3 | |||
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Member
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Quote:
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"Thanks for this!" says: | Catch (01-20-2010) |
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#4 | |||
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Member
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I can't offer much advice. I'm in much the same predicament myself.
My memory lets me down big time and I find I'm unable to make decisions or think things through fast enough in work. If I don't tell my employer, I am responsible for my actions. If I do tell them, they are responsible for my actions, errors and ommissions. I'm a registered nurse; honestly, who wants a fish-brain looking after them? plus I'm in charge of up to 90 residents and can't take a break if needed. things just snowball out of hand if you don't keep up with the work. If I tell them, I know for a fact my bookings will dry up (agency work). they can't take the risk with the health of others. Or I would need a fitness certificate for each shift. Either way, i'm stuffed. Don't rush into telling all. Maybe they;ll think it's a transient situation. people never guess the worst. |
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"Thanks for this!" says: | Catch (01-20-2010) |
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#5 | |||
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Member
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I'm facing many of the same issues and, while trying not to become depressed about it, I'm doing fairly well with a little help. I'm working with my therapist on a plan B. Having some well laid out plans is starting to make the concept of life after my current job not a nightmare but the next step. I've made drastic changes in my life before and came out good, I'm sure you have too.
That's not to say I'm giving up or anything, I still have a long time where I'm at now but I'm starting to get a pretty good idea of what I can do next by looking at the strengths I still have. Still sucks, can't pretend it doesn't, but lots of things suck anymore. Good luck to you.
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Keith - dx'd 2/07 "Where's my Uranium PU36 Explosive Space Immune System Modulator?" rebif 3/07 - 12/07 relapse 2/08 copaxone 3/08 - 11/08 relapse 5/08 relapse 10/08 rebif 2/09 Minocycline 6/09 Not a damn thing 7/09 . |
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#6 | |||
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Elder
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I was just talking to the big city MS center about my own level of mental disorganization. I ran a huge prison medical center, and never thought twice about it. I organized the entire pharmacy, and made the meds that were instant refills, so they were automatic and well, lets just say I was several steps ahead of everyone else. Then...MS. I have days when I cant walk and chew gum at the same time. I am mentally disorganized! The big center said this is the #1 complaint of most MS patients is not being able to focus anymore. Many of us used to multi task, and be extremely organized, and then....you cant remember what you had for breakfast. Cant rememer the extension of the bosses phone line.
Being over tired, or over stressed does make this worse. Even being stressed about how stressed you are, doesnt help. I was told that DEstressing will help. Try yoga, meditation, Tai Chi, or other things that help the mind relax, and let go. The Wii balance board can be done at home, or there are tons of yoga DVDs at the store that can be done at home. Even if you only give it a half hour a day, it will do great things to help destress you. hang in there. ![]()
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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"Thanks for this!" says: | Catch (01-20-2010), tinglytoes (01-09-2010) |
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#7 | |||
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Grand Magnate
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i feel for you too catch.
i was in nursing, neonates, icu and after 2 yrs of being dx'd i could tell i was slipping. then i retired. too physically demanding. i would suggest you sit down and talk to your dr about this. it's as much a sx of MS (or meds) and anything else. he might be able to make some changes. i also take something (namenda) for memory and cognition and i believe it's helped. not perfect, but better. good luck with this. and, i'd try not to disclose in case your dr can help and you improve.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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"Thanks for this!" says: | Catch (01-20-2010), tinglytoes (01-13-2010) |
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