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Old 01-13-2010, 06:59 PM #1
4cordelia 4cordelia is offline
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Thanks so much for all the great info.
My new GP is really on top of things. Been through all the mentioned blood work and then some. Thyroid was only at the bottom of the normal range so she said it's not something to worry about just yet, but will keep a watchful eye on it. MSV was low and I can't remember what she said about that one. I'll ask her at my 2 week appt.

Acutally, this recurrance is a blessing. It reminds me of the many people with much worse problems than mine. I think I'll go home and bake a batch of homemade bread and take it to my neighbor who is terminally ill with breast cancer. Can't think of a better way to spend my insomnia hours.

Happy Day!
Cordelia
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Old 01-13-2010, 09:34 PM #2
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Welcome, Cordelia, nice to meet you. It sounds like your Docs think you have MS and you have been tested for all the other illnesses it could be, so, I would go with that and ask your Docs for meds to treat your symptoms when needed and live your life to the fullest.

When a real DX comes, will be the time to ask about Disease Modifying Drugs. In the meantime, enjoy all the benefits of your new home....the NeuroTalk Forum..
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Old 01-13-2010, 10:06 PM #3
jgandee jgandee is offline
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Welcome. MS is a common one and you have many of the symptoms. As was said above, there are so many others that can mink MS. I was wandering if you have vertigo or memory issues? When you had the problems, would resting will awake make them better? Was there any head pressure, headaches, light sensitity? I would get copies of the radiologist reports. You can usually get them from the imaging center. They sometimes say minor things that the Dr will not bring up and they later become larger things like mild ischemic areas, sinum impactions.

Some dx take a long time because they dont find some things right away. Try not to panic over it, just keep trying. The insurance is a little strugle. I would eventually recommend the spinal tap. My Dr did it in his office by him self with no imaging. He was very good at it.
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Old 01-15-2010, 07:35 PM #4
cat265 cat265 is offline
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Quote:
Originally Posted by jgandee View Post
When you had the problems, would resting will awake make them better? Was there any head pressure, headaches, light sensitity?
.
Why did you ask these questions? Is head pressure, resting, headaches and light sensitivity all related to MS or somthing eles? I have all of the above. The head pressure is the worst and everytime I mention that symptom or complaint I get looks like Iam nuts. Its a feeling like my head is about to pop off or explode.
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Old 01-15-2010, 08:37 PM #5
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I had all of those, sometimes really bad. They checked me for everything, MS, lyme, the list goes on. They are now concluding I have CADASIL. I am not sure what you have CAT, but I will look back over your posts. I think we should talk more.
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