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Old 01-22-2010, 07:09 PM #1
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I believe this is more of a symptom relief drug, rather than an actual MS treatment.

It evidently helps people to walk faster in timed trials. This is important because it takes a lot of energy to walk and if you can walk faster your energy takes you further?

I think you're thinking about Fingolimod. I think that one is a treatment.
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Old 01-22-2010, 07:21 PM #2
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I too am gonna hang back and wait. lets see where this one goes. Change scares me.
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Old 01-22-2010, 07:36 PM #3
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Another pretty poison....literally... it's used as Bird Poison.

I hope it helps those of you who will be able to take it safely.
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Old 01-22-2010, 08:09 PM #4
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I spoke with one of the reps a few months ago. I forget exactly how he explained its function but was interesting and worth a try.

I know 1st hand testosterone increases strength (i take it) but this works different such as possibly adding a jumper to bypass the shorted nerve which if true is awesome since im still going downhilll even in Ty.

Goodluck all
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Old 01-22-2010, 09:16 PM #5
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Quote:
Originally Posted by Riverwild View Post
I believe this is more of a symptom relief drug, rather than an actual MS treatment.

It evidently helps people to walk faster in timed trials. This is important because it takes a lot of energy to walk and if you can walk faster your energy takes you further?

I think you're thinking about Fingolimod. I think that one is a treatment.
Yep. Your right I was thinking of Fingolimod.

Too M-A-N-Y drugs.
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Old 01-22-2010, 10:10 PM #6
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Funny, they begin with an *F*
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Old 01-23-2010, 12:35 AM #7
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Hey, if I can get my neuro to let me take it and my insurance company will pay for it, sign me up. I still have my boots and pack stuffed in the dark depths of the closet and I know, probably false hope for longing to stroll the high country and smell the fresh mountain air. But hey, you got to go for it!
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Old 01-23-2010, 09:37 AM #8
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If neuro and insurance approves it, I may give this one a try too.
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Old 01-23-2010, 10:14 AM #9
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My neuro likes this drug too. I told him one poison at a time for me.
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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Old 01-23-2010, 11:52 AM #10
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I tried this bird poison (as I affectionately called it) had no real side effects except some very minor throat irritation) but with my PPMS and so advanced in a chair for a year it was not effective for me (You can't read the bitterness in that, can you?)
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