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Old 02-02-2010, 11:45 AM #1
ginamass ginamass is offline
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Default Fampridine

I have been taking the compounded version. 4AP- 20 mgs (5 mgs every 4 hours) for a couple of months. I can bend the toes on my right foot which was not happening before. I have more energy. There is alot of info on the web about it. Interesting. Good stuff so far for me. I am going to have to stay with the compounded version for now. The new sustained release is expensive!!
Gina
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Old 02-02-2010, 09:47 PM #2
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FYI,

It also has a beneficial effect on heat related symptoms for some people.
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Old 02-03-2010, 05:37 PM #3
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Quote:
Originally Posted by ginamass View Post
I have been taking the compounded version. 4AP- 20 mgs (5 mgs every 4 hours) for a couple of months. I can bend the toes on my right foot which was not happening before. I have more energy. There is alot of info on the web about it. Interesting. Good stuff so far for me. I am going to have to stay with the compounded version for now.

The new sustained release is expensive!!
Gina
Gina, how do you know what the cost will be and what is it ? I'm guessing costly but don't have any info.
Linda
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Old 02-03-2010, 06:08 PM #4
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More FYI

www.pharmalive.com/News/Index.cfm?articleid=682554

Feb 3, 2010 ... AMPYRA Wholesale Acquisition Price Set at $1056 per 30-Day Supply ... Launched for Uninsured and Underinsured To Provide AMPYRA at No Cost ...
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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Old 02-03-2010, 07:32 PM #5
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Wow -- I hope my insurance will cover it. I have an appointment with my neuro next week. We'll see. Although, they covered copaxone and tysabri 100% so I would think it would cover this too.
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