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Old 02-07-2010, 10:53 PM #1
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!st of all, welcome to the forum. We have a great family here!

When I was 1st diagnosed I went to a MS association meeting. I saw a lot of things there that that scared the begeebees out of me. I didn't want to end up like 'those people'! I also did a lot of research. A person can almost imagine themselves having many of the symptoms with MS. You just have to give your body time to learn about itself and read but don't see yourself in everything. Be educated but not scared. I've been living with this stuff since 1997 and am planning on going to Disney World this fall and enjoying the heck out of myself and my grand kids!
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Old 02-07-2010, 11:31 PM #2
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I just seen this on a forum and it got me worried. It was a forum that had a post of someone peeing in the Wal-Mart parking lot. I have googled MS incontinence and got tons of results and facts with percentages of people having problems with it is around 80%.
Yet you all have no problems with it..I mean that you don't have incontinence.
Even the Mayo clinic says incontinence is one of the "common problems" Fatigue dizziness....things that I have felt.

It's just that the incontinence scares me the most, but the replies here form you all and the fact that many treatments are in effect if bladder stuff comes up, makes me feel better.
All in all.... pads and stuff like that seem rare to actually use..just if anything doesn't work....even then a cath sounds promising which will be what I do. I don't want to think about pads.
I've also met a 64 year old at the nursing home with MS....she told me to hang in there and visit her often(I will) She's in a chair and uses caths, but she seems able minded and funny as heck.

It's just been two weeks so nothing is affirmative yet.... I'm just going to try and not worry to much atm.... I also got a new radio control car to work on so I will concentrate with that right now(took time off from work)

Thanks you all. You all are so great and I wish you all the best as well.
I really mean that. I want to hug and get a hug, but this is the restriction of the internet.
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Old 02-08-2010, 02:45 AM #3
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Welcome EricP

Once you've been with us a bit longer, and read a lot more in the forums, you'll see that each and every one of us is that little bit dissimilar.

There are times when I feel like we all have a different disease, with just the name "MS" to connect us. Our symptoms can be so diverse.

I've had some incontinence and I've also had the direct opposite..... when I just could not pass my urine, but please know that I was diagnosed with MS over 30 years ago. I'm one of our older members .... well .... middle aged plus a bit ... and my continence issues are only recent.

Please try to put this symptom out of your mind for now. 80% is a little far fetched... as I'm sure others here will tell you, and I'm sure there are many other things that you need to look into for now.

Have a read through this forum, and let us know if there's anything else we can help you with.
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Old 02-08-2010, 04:38 AM #4
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When I was first diagnosed I read everything I could find on MS. Most of it was on the Internet. And I probably talked myself into most of the symptoms I read about! It's just inevitable. But, in reality, I really only had a few of them. The more I read, the more I thought I would eventually end up with them all. And that's just not the case. I've learned that each of us, although we share a disease "name", each experience a totally different course. I've learned to take what I read with a grain of salt and realize that my MS is unique to me. It's taken a while but I've relaxed quite a bit and just take each day as it comes. Worrying about what tomorrow or even next week holds is just a waste of time and energy.
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Old 02-08-2010, 10:52 AM #5
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Quote:
Originally Posted by EricP View Post
It was a forum that had a post of someone peeing in the Wal-Mart parking lot.

Hmmmmmm......this didn't happen to be in Georgia, did it?
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Old 02-08-2010, 11:10 AM #6
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The 80% probably means anyone, with MS, who may have had an incident/accident. Heck, that could be 80% of all people..
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Old 02-08-2010, 12:59 PM #7
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Old neighborhood neighbors loved making Big (heavy) Joyce laugh so hard pee ran down her leg. 2 kids, age, laughter, weight - she had no MS but they could and did. A neat but strange neighborhood. I wasn't yet DXed, but nobody did that to me since I didn't respond.
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Old 02-08-2010, 04:02 PM #8
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Okay, so I'm one of the few here who does suffer from incontinence..but I had four kids...their weights were-9lb. 1 1/2oz.; 10 lbs 4 1/2oz.; 10 lbs. 5oz.; and the girl 9 lb. 12oz.
And my mom and sis both suffered from incontinence. It can be inherited, I know.
I'm on meds to stop the urge incontinence. It has lessened; the stress incontinence is worse, but it's because of surgery that made it that way, not MS.

I also agree-we can be an informed patient, but just be wary of the self-fulfilling prophecy syndrome. If you keep thinking it will happen to you, then it just might.
MS has many symptoms, and many people experience different things.
Try to concentrate on what you CAN do, not on what you can't...
And tune in here often...lots of great info, lots of laughs, some tears and a whole bunch of hugs!!
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Old 02-08-2010, 06:03 PM #9
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The twins together were 10 lbs, 6 ounces. I call them my 10 pound baby. My friend (who did not have MS) after birthing 4 kids says her bladder fell out and she pushed it back in. Can bladders do that? I heard of happening with cows.
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