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Neuro appointment and fampridine

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Old 02-23-2010, 12:55 PM #1
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yes, but can we balance that with the side effects created by the drug? let alone the cost financially? one second? I am not willing to add yet more drugs into my system for a one second uptake in speed.

I am glad that Kim has improved her walking speed and stability, but for me, it just wouldnt make sense.
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Old 02-23-2010, 07:08 PM #2
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The decrease in walking time may not be the ultimate benefit. Since the nerves work better it may significantly reduce the work of walking, giving much more energy to do other things
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Old 02-23-2010, 07:31 PM #3
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I have been wondering whether of not it may reduce the fatigue/pain involved with walking. My neuro said no. I guess I will have to take a wait and see attitude. I plan to talk with him again about it after my MRI in May.
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Old 02-24-2010, 07:28 AM #4
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Can one still have a compounding pharmacy make up SR 4-AP or does a release of FDA approved Ampyra mean no or does one have until March? At a cost @31.00 dollars I did this (Prescribing doctor needed). I'm in a chair, tried but it did nothing for me (I can't walk) so discontinued. I found place in AZ (friend had used it so I did, but doctor should know where in your area you might turn). Good luck if you try!!!
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Old 02-24-2010, 09:43 AM #5
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Neuro yesterday said it improves walking for those who can walk...improves eyesight for those who struggle and get fatigued at the computer.
He said that in aiding the transmission of nerve impulses, it reduces the fatigue that we get in just struggling to walk/function. I'm in...
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Old 02-24-2010, 11:45 AM #6
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Will your insurance cover it? My neuro says no and it is over 1000.00 per month.
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Old 02-24-2010, 01:41 PM #7
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Weird...my neuro thinks that insurance cos. will cover it...don't know where he gets that idea, since some insurance cos. won't cover a drug until it's been on the market one year.
We'll see...
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Last edited by Debbie D; 02-24-2010 at 01:41 PM. Reason: substituted word in text
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