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Me and meds just don't get along :(

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Old 03-01-2010, 12:55 PM #1
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Update: My neuro fired me. At least he's refering me elsewhere, but guessing that not taking his advice was the straw that broke the camel's back. At least it's the local MS center.
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Old 03-01-2010, 01:05 PM #2
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These Neuro's (who, BTW, don't know enough about MS) sure do get their knickers in a knot when we don't follow their advice.

IMHO, I am the best judge of what works or doesn't work for me. These Neuro's are learning from us......contrary to what they may like to think.
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Old 03-01-2010, 02:08 PM #3
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What Kitty said.....Know it all, no nothing jerks..
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Old 03-01-2010, 02:30 PM #4
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Did he fire you because you do not weant to try tysabri? JERK!
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Old 03-01-2010, 04:34 PM #5
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He's not the office's specialist. I've met that guy before, and he's more on the game. Still when they were talking about consults with that gentleman, it was all about talking to him about Ty. So I was a little surprised they decided to just dump me completely elsewhere when I said no to the Ty instead of keeping me in their office. Maybe I was a little trouble maker. At least the center is just literally down the road from me, and I never even knew it was that close.
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Old 03-01-2010, 04:55 PM #6
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Quote:
Originally Posted by FinLady View Post
He's not the office's specialist. I've met that guy before, and he's more on the game. Still when they were talking about consults with that gentleman, it was all about talking to him about Ty. So I was a little surprised they decided to just dump me completely elsewhere when I said no to the Ty instead of keeping me in their office. Maybe I was a little trouble maker. At least the center is just literally down the road from me, and I never even knew it was that close.
Maybe you're not "financially attractive" to them anymore since you turned Ty down.
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Old 03-01-2010, 05:04 PM #7
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I hate to say it, kitty - but you may be right. They've been trying to sell me on Ty since '07.
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Old 03-04-2010, 02:38 AM #8
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Quote:
Originally Posted by Kitty View Post
These Neuro's (who, BTW, don't know enough about MS) sure do get their knickers in a knot when we don't follow their advice.

IMHO, I am the best judge of what works or doesn't work for me. These Neuro's are learning from us......contrary to what they may like to think.
Thank you! I needed this advice tonight!
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Old 03-02-2010, 09:25 PM #9
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Update: My neuro fired me. At least he's refering me elsewhere, but guessing that not taking his advice was the straw that broke the camel's back. At least it's the local MS center.
I hate to hear this. My neuro said from the beginnning that should I decide not to take meds, he would be with me either way. I am taking Beta, but it's reassuring to know that he would do all he can for me,...meds or not.

I hope you get a good neuro willing to work with you.
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Old 03-03-2010, 10:57 AM #10
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They did call back yesterday to let me know that everything has been sent to the MS center. Also found out I need to pick up CDs of my MRIs. Found out that they had a direct link to the MRI place so never needed to have some themselves. They also have me going to the specialist in their group for a quick consult since they do not know how long it's gonna take for me to get into the center.

My neuro feels like he's over his head with me, so I can respect that part now that I know. Rather he be honest than not about it. What a difference learning that tidbit has made. So I'm glad he's working towards finding me someone who has more knowledge.
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