Quote:
Originally Posted by Sparkledust
Hi Kitty,
LDN was working really well for me before I started Rebif.
I take 4.5mgs per day too, I had to get it on a private prescription as Neuro wouldn't prescribe it.
I phoned Rebif support today and they confirmed fatigue was a recognised side effect.
The woman suggested I contact Neuro or MS nurse who might suggest lowering Rebif dose to 22mgs.
She also said Rebif fatigue might never abate.
My Neuro previously said that if Rebif wasn't good for me I might be considered for Tsybari.
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My Neuro wouldn't prescribe it either. So I get it from a different doctor. I never took it along with the Interferons. Since the Beta I was taking only had a 30% chance of
possibly helping with progression....and it was making me feel so miserable....I just decided it wasn't worth the gamble (or the cost). I've been taking LDN by itself now for over a year and haven't looked back. It's been the best thing I've ever done.
02-28-2010, 04:06 PM
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