NeuroTalk Support Groups - Ampyra's Been Released for prescribing

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Multiple Sclerosis (https://www.neurotalk.org/multiple-sclerosis/)

- - Ampyra's Been Released for prescribing (https://www.neurotalk.org/multiple-sclerosis/115800-ampyras-released-prescribing.html)

Bannet

03-24-2010 09:27 PM

Hi everyone. I am going on Ampyra. Doc filled out the paperwork and I signed it. now just waiting for the 1-800 people to call me.
My legs are getting really bad. I have alot of pain stiffness and spasms and I walk slower than a turtle the last couple of weeks it has increased and I feel like im at the end of my rope.

My MS specialist whom I love and trust alot told me that I also would be eligible for patient assistance that he would see to that

He told me its not a miracle pill but its possible that it could improve my legs and at this point i would try anything. I will keep you posted when I start it. My fingers are crossed.

Debbie D

03-24-2010 09:58 PM

Beth,
it's been forever!! So sorry to hear you're ailing...have you tried MMJ for the spasms? I haven't, sincie medical MJ hasn't been approved in my state, but my spasms are getting so painful, and the muscle relaxants aren't working as well...I'm tempted to go to MI to get a script from a neuro there hah hah...
hope the ampyra helps you. Please let us know!! And take care!:hug::hug:

Bannet

03-24-2010 11:41 PM

Hi Debbie it has been forever hasn't it lol. I went to my MS doc today and we discussed mmj and Ampyra. He wanted me to try the pill first. If that doesn't work he said we would definetely discuss MMJ.

Hopefully it will help. My pain and spasms sometimes get out of control and it's just awful. His concern with the MM is my fatigue is really bad and he's afraid that might make it worse.

I guess we will see huh? One day at a time. Great talking to you. I've missed my NT buds.:D

Grammie 2 3

03-25-2010 02:05 PM

I hope it helps you at least as much as it has helped me walk (I'm still in the extended study). I do exercise to
the best of my ability and know that helps me, too.
Best wishes,
Linda

RW, I googled Famp/seizures-reported 2 cases

EddieF

03-25-2010 04:35 PM

My neuro mentioned it as I said Fampridine? I see him mid April and will likely get the paperwork rolling. Wish you luck.

ewizabeth

03-25-2010 06:10 PM

I filled out a form for this today when I had my checkup with my neuro. He said he'd RX a 30 day supply to see if it helps me energy-wise since I work on my feet. My legs are dragging by the end of the day so maybe this will help. I'll check back when I get it and let you all know how it goes for me.

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