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03-02-2010, 12:43 AM
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Elder
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http://www.nationalmssociety.org/new....aspx?nid=2586
On the NMSS page today...now who wants to pony up and pay for it? 
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Instant Karma's gonna get you-gonna knock you right in the head...John Lennon |
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| "Thanks for this!" says: | AfterMyNap (03-02-2010), barb02 (03-02-2010), Dejibo (03-02-2010), ewizabeth (03-25-2010), Grammie 2 3 (03-13-2010), Lady (03-14-2010) |
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03-02-2010, 08:05 AM
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Grand Magnate
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I paid $31.00 for a 30 day supply of SR 4-AP from a compounding pharmacy. Now it would only cost me a co-pay of $20.00 with health insurance paying the rest. Expensive for them, but cheaper for me!!! A shame it didn't help me.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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| "Thanks for this!" says: | Grammie 2 3 (03-13-2010) |
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03-13-2010, 02:57 PM
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#3 | ||
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Member
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I have been in the Fampridine SR phase III/extended study; now Ampyra. It has helped me with foot drop/walking therefore, hope I will be able to find a way to afford the med as I have a 25% copay
 I now walk with one cane instead of two! My only complaint is it wears off before the 12 hr interval-I would like to take it at about 9 hrs.Linda |
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03-13-2010, 03:48 PM
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Grand Magnate
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Linda if you can't afford it, try 4-AP SR (if still can get and I bet you can. use a "good" compounder who doesn't have old stock (it loses efficiency). PM me if you need.
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Kicker PPMS, DXed 2002 Queen of Maryland Wise Elder no matter what my count is. |
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03-13-2010, 06:07 PM
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Magnate
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Ampyra has a registry similar to Tysabri. I saw the paperwork yesterday when I stopped into my neuro's office. Not sure why. but his take was that it is because of the seizure risk. If anyone does go on it, let us know what that's all about, will you please?
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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03-16-2010, 07:40 PM
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#6 | ||
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Member
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RW, what I learned was that one person in the trial took more than rx and much closer in time - she had a seizure
Linda |
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| "Thanks for this!" says: | AfterMyNap (03-16-2010) |
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03-17-2010, 06:15 PM
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Magnate
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Quote:
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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03-17-2010, 07:13 PM
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#8 | |||
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Member
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If it heals its worth it. I'll try it regardless. Testosterone is $100 for 4 month supply (male) which sure as heck along with protein helped MY strength.
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03-18-2010, 01:30 PM
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Member
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Quote:
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03-18-2010, 04:25 PM
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Magnate
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Quote:
 I haven't paid much attention to Ampyra since I don't need it (yet?) and I figured- hey, it's 4AP-already a lot known about it, but this has got my curiousity up. I'll post what I find out.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away? . I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends! diagnosed 09/03/2004 scheduled to start Tysabri 03/05 Tysabri withdrawn from market 02/28/05 Copaxone 05/05-12/06 Tysabri returned to market 06/05/06 Found a new neuro 04/07 Tysabri 05/25/07-present Medical Marijuana legally 12/03/09 . Negative for JC virus antibodies! . I'm doing alright and making good grades, The future's so bright, I gotta wear shades! . |
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| "Thanks for this!" says: | SallyC (03-18-2010) |
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