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Old 03-04-2010, 05:54 PM #21
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Thx for your reply, Sandy. Yes, not "getting it at home", by itself would not be a reason to seek someone else. But, when there is skewed thinking related to an illness, that is not difficult for me to understand. Over the 8 yrs that I've had MS, my symptoms have been so many and so varied, that nothing will surprise either me or DH.

He is the one that clued in to it being a symptom of the disease. He knows how oddly it can, and has affected me. Although he is hurt and angry, he is usually not blaming, and he will forgive me, because it was not me. I had no control, or concept that, under the circumstances, this could actually be wrong. It was very easy to justify it, even tho, in my head, I knew that it would be breaking marriage vows.

Not sure that proof is possible. Might have been, 5 days ago, prior to steroids, if I'd had an MRI, but inflammation is likely to be gone. Is there another clinical way to prove a flare?

Also not sure that proof is necessary, as he believes that it is a result of my MS.

~ Faith


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Originally Posted by SandyC View Post
This is a hard one for me since I am on the spousal side. Since this is something new, I would suspect it has something to do with the flare, maybe. I just don't know because as a spouse I would question it as well. Please do not think ill of me, just giving you the spouse side as best I can. I told Trish I didn't even know how to respond and be bias.

However, with that being said, I do hope you seek some sort of help because this is not normal. When I read your first post I knew immediately this is not the Faith we "know" at all. It seems strange that your husband would not feel the same way. But, with that said, I can also feel his pain and his anger that you would even think about a site like that because you weren't getting any at home. That's not a judgment, it's how a spouse would feel.

I know if Jim did something like this my first reaction would be hurt and utter devastation that he even thought to go and solicit sex from someone else. In our world sex is not a priority in our relationship at all. It's good, don't get me wrong, and yes we still do. But if I had to go without it's all good in that sense as well. Intimacy is more of a priority for us. So, yeah, if Jim even thought about what you almost did I would be hurt and feel my world was turned upside down.

I think your husband may be feeling the same way. Think about it, he is having issues in that area too. To have his wife look outside the marital home must be a huge blow to his ego. He may be hiding it behind his anger so you don't see the hurt. I think anger is a normal and appropriate response to this and I think you need to give him time to digest it all and grieve it.

If this is a medical problem brought on by your flare than you need to prove that to him. Yes, prove it because not everyone would jump to that conclusion if they do not have ms or know what a flare can do. Hell, even I didn't know it until your post. I truly am sorry your going through this, I really am because this is not like you. Please get to a doctor and get this resolved so your husband can see that it may be related to your flare.

I know your thinking why should you have to prove that to him or yourself? Because this is your marriage and he will need to know that is the reason behind your behavior. Only then will he be able to move passed it and forgive. Even if it's not due to the flare he may be able to get passed it but that will take some time as well.

Please do not think I am judging you. Just wanted you to see the other side and why he may be behaving like that. We spouses who stay, and there are many who do, stay because we love our spouse. MS is not a factor and never will be. But when something like this happens, it crushes everything we believe in and makes us wonder why we tried? Hope that makes sense.

I do hope you two work it out. Be honest and open with him. He's only human.
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Old 03-04-2010, 09:46 PM #22
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Faith - I don't think there is a way to clinically prove this and a physician may be hard pressed to get in the middle by saying one way or another because it would be difficult to prove. If you know what I mean. However, discussing this with your neuro, imo, is important. And, yes, this is out of character for you and definitely a cause for concern - as many of us on here expressed.

The brain is so complex, hence the neuros can't grasp it all - they're just "practicing". j/k any neuros reading this. With many brain damaged patients (MS or not) there are a plethora of behavioral/personality changes that CAN take place. Some subtle, some not so subtle. Throw in some medications, depression issues, hormones, etc., etc. and . . .

I did find this and thought you might find it interesting. . . (Maybe that could be your "proof"). This could possibly, and I use possibly lightly as I am not in your situation, etc., be what you are experiencing.

http://www.ncbi.nlm.nih.gov/pubmed/12056938

The bigger issue here is to not sweep it under the carpet because DH is forgiving. It may lay dormant under the carpet and resurface. Please, talk to your dr about this.
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Old 03-04-2010, 10:01 PM #23
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I thought you said he was not being reasonable which is why I mentioned proof. I do believe since this is so out of character and may be related to your ms a doctor could confirm the possibility. The main question will more likely be is it something caused by ms or something enitrely different? Either way, it needs to be evaluated and I am glad your taking steps to find out. Much prayers to both of you.
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Old 03-04-2010, 10:14 PM #24
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tkrik -- Talk to my doc about what? the article says the opposite of what happened to me.

Quote:
Originally Posted by tkrik View Post
Faith - I don't think there is a way to clinically prove this and a physician may be hard pressed to get in the middle by saying one way or another because it would be difficult to prove. If you know what I mean. However, discussing this with your neuro, imo, is important. And, yes, this is out of character for you and definitely a cause for concern - as many of us on here expressed.

The brain is so complex, hence the neuros can't grasp it all - they're just "practicing". j/k any neuros reading this. With many brain damaged patients (MS or not) there are a plethora of behavioral/personality changes that CAN take place. Some subtle, some not so subtle. Throw in some medications, depression issues, hormones, etc., etc. and . . .

I did find this and thought you might find it interesting. . . (Maybe that could be your "proof"). This could possibly, and I use possibly lightly as I am not in your situation, etc., be what you are experiencing.

http://www.ncbi.nlm.nih.gov/pubmed/12056938

The bigger issue here is to not sweep it under the carpet because DH is forgiving. It may lay dormant under the carpet and resurface. Please, talk to your dr about this.
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Old 03-05-2010, 08:58 AM #25
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a peice of that article speaks about DYS function, but the next sentence says

In contrast, hypersexual behavior and paraphilias are distinctly uncommon in this population of patients, but have been associated with various focal brain lesions


This is the leg to stand on. You are RARE in what is happening to you, but not ALONE. Others have it Documented as a REAL happening in MS folks.
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Old 03-05-2010, 09:06 AM #26
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Thx, Dej. It IS helpful to know that I am not alone. MS is, already, not a hugely common disease whose "typical" symptoms are often odd. It is comforting to know that symptoms as bizarre and unacceptable as mine are not alone.

I don't know the person who did these things.

~ Faith



Quote:
Originally Posted by Dejibo View Post
a peice of that article speaks about DYS function, but the next sentence says

In contrast, hypersexual behavior and paraphilias are distinctly uncommon in this population of patients, but have been associated with various focal brain lesions


This is the leg to stand on. You are RARE in what is happening to you, but not ALONE. Others have it Documented as a REAL happening in MS folks.
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Old 03-05-2010, 12:01 PM #27
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Dej - That was exactly my point in posting the article and it does talk about "altered sexual behavior" and that Faith is NOT alone in this as it does happen not only with MS patients but others with brain damage/injuries.

Faith - I hope it helps you to know that you aren't alone and that this type of issue has been observed/documented in MS patients, despite its rarity.
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Old 03-05-2010, 02:49 PM #28
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Some things getting better; others getting worse.

Has given me back use of home phone and computer, without monitoring. Is considering, after 3 days at PV day hospital next wk, giving me back cell phone and car keys. Which are mine, BTW, and he stole. (Contacted an attorney about getting a court order to legally get them back, but could easily take 2-3 wks, and I am hopeful that he will come to his senses prior to that.)

But, after us both agreeing to me going to day h next wk, he actually called the police to our home today to request that, if necessary, they physically take me to PV inpatient hosp, even tho nothing had changed since yesterday. Of course, the police know their legal boundaries, and kind of just shook their head when they heard what he was requesting.

Today, I think he needs meds and therapy more than I do, to deal w/ his unfounded anxieties.

~ Faith
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Old 03-05-2010, 06:45 PM #29
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Sounds like you and DH could both use a little of that day hospital. Some therapy by a professional could be beneficial.

My best wishes for you both, Faith.
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Old 03-05-2010, 06:53 PM #30
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Quote:
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Sounds like you and DH could both use a little of that day hospital. (Thx for that! Lol) Some therapy by a professional could be beneficial.

My best wishes for you both, Faith.
Yes; we have some marriage therapy set up.
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