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#21 | |||
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Member
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Thx for your reply, Sandy. Yes, not "getting it at home", by itself would not be a reason to seek someone else. But, when there is skewed thinking related to an illness, that is not difficult for me to understand. Over the 8 yrs that I've had MS, my symptoms have been so many and so varied, that nothing will surprise either me or DH.
He is the one that clued in to it being a symptom of the disease. He knows how oddly it can, and has affected me. Although he is hurt and angry, he is usually not blaming, and he will forgive me, because it was not me. I had no control, or concept that, under the circumstances, this could actually be wrong. It was very easy to justify it, even tho, in my head, I knew that it would be breaking marriage vows. Not sure that proof is possible. Might have been, 5 days ago, prior to steroids, if I'd had an MRI, but inflammation is likely to be gone. Is there another clinical way to prove a flare? Also not sure that proof is necessary, as he believes that it is a result of my MS. ~ Faith Quote:
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#22 | |||
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Wise Elder
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Faith - I don't think there is a way to clinically prove this and a physician may be hard pressed to get in the middle by saying one way or another because it would be difficult to prove. If you know what I mean. However, discussing this with your neuro, imo, is important. And, yes, this is out of character for you and definitely a cause for concern - as many of us on here expressed.
The brain is so complex, hence the neuros can't grasp it all - they're just "practicing" ![]() ![]() ![]() I did find this and thought you might find it interesting. . . (Maybe that could be your "proof"). This could possibly, and I use possibly lightly as I am not in your situation, etc., be what you are experiencing. http://www.ncbi.nlm.nih.gov/pubmed/12056938 The bigger issue here is to not sweep it under the carpet because DH is forgiving. It may lay dormant under the carpet and resurface. Please, talk to your dr about this. ![]() |
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#23 | |||
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Wise Elder
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I thought you said he was not being reasonable which is why I mentioned proof. I do believe since this is so out of character and may be related to your ms a doctor could confirm the possibility. The main question will more likely be is it something caused by ms or something enitrely different? Either way, it needs to be evaluated and I am glad your taking steps to find out. Much prayers to both of you.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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#24 | |||
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tkrik -- Talk to my doc about what? the article says the opposite of what happened to me.
Quote:
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#25 | |||
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Elder
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a peice of that article speaks about DYS function, but the next sentence says
In contrast, hypersexual behavior and paraphilias are distinctly uncommon in this population of patients, but have been associated with various focal brain lesions This is the leg to stand on. You are RARE in what is happening to you, but not ALONE. Others have it Documented as a REAL happening in MS folks.
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RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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#26 | |||
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Member
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Thx, Dej. It IS helpful to know that I am not alone. MS is, already, not a hugely common disease whose "typical" symptoms are often odd. It is comforting to know that symptoms as bizarre and unacceptable as mine are not alone.
I don't know the person who did these things. ~ Faith Quote:
__________________
aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#27 | |||
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Wise Elder
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Dej - That was exactly my point in posting the article and it does talk about "altered sexual behavior" and that Faith is NOT alone in this as it does happen not only with MS patients but others with brain damage/injuries.
Faith - I hope it helps you to know that you aren't alone and that this type of issue has been observed/documented in MS patients, despite its rarity. ![]() |
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#28 | |||
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Member
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Some things getting better; others getting worse.
Has given me back use of home phone and computer, without monitoring. Is considering, after 3 days at PV day hospital next wk, giving me back cell phone and car keys. Which are mine, BTW, and he stole. (Contacted an attorney about getting a court order to legally get them back, but could easily take 2-3 wks, and I am hopeful that he will come to his senses prior to that.) But, after us both agreeing to me going to day h next wk, he actually called the police to our home today to request that, if necessary, they physically take me to PV inpatient hosp, even tho nothing had changed since yesterday. Of course, the police know their legal boundaries, and kind of just shook their head when they heard what he was requesting. Today, I think he needs meds and therapy more than I do, to deal w/ his unfounded anxieties. ~ Faith
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aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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#29 | |||
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In Remembrance
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Sounds like you and DH could both use a little of that day hospital. Some therapy by a professional could be beneficial.
My best wishes for you both, Faith. ![]() ![]()
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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"Thanks for this!" says: | Dejibo (03-05-2010) |
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#30 | |||
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Member
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Yes; we have some marriage therapy set up.
__________________
aka MamaBug Symptoms since 01/2002; Dx with MS: 10/2003; Back in limbo, then re-dx w/ MS: 07/2008 Betaseron 11/2003-08/2008; Copaxone 09/2008-present Began receiving SSDI 11/2008 |
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Closed Thread |
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