Hi and welcome to NeuroTalk. Many of us here can relate to your frustration with the dx process. It certainly sounds like MS based on your sx.

Have you had a LP done yet? Was your MRI done with contrast? What meds are you taking?

I just had a bout of Optic Neuritis but got over it without the use of IVSM. It took about six weeks.

Are you seeing a Neuro who specializes in MS? Sometimes it takes seeing someone whose emphasis is on MS in order to get a dx.

Hello, and welcome. I am sorry you have the need to seek us out, but glad we can be here to help.

#1 MS is NOT an emergency. Oh boy! it feels like one, and when your world is spining out of control, and no one seems to have good solid answers, its frustrating, and maddening! you just want answers NOW!

#2 I always advocate that if you can, please seek out a neuro or MS center that specializes in MS. This way you are not in the siezure/stroke patient office. You get those that make MS and only MS their focus. Its worth it, even if you only see them once, and then use the local guy from there.

The problem is that MS is a process of ruling things out, rather than ruling things in. They start with a list of about 100 things that can mimic MS, including brain lesions. Then then start knocking things off the list. Lyme, Lupus, SjoGhrens,Celiac, and a whole laundry list of vitamin def stuff. Low D, Low B12 and so forth. Many things can be ruled out thru simple blood work, and other such tests, but it does take time to do them.

Please, keep a diary. A diary of your symptoms. how long they last, and what they are. I have one of those pocket calendars that I use to keep track of my stuff. Keep a copy of your records, so that you can easily pull out what is needed for the next MD down the line.

MS is a disease that is diagnosed over time. It normally takes at least six months, and at most years for some to find the answers. ON or optic neuritis is a hallmark of this disease, and it makes them most likely to lean towards MS when you get that one.

Pull up a chair, and let us wait with you. We are awesome cheerleaders, hand holders, prayer makers, and friends. Hang in there. it does take time.

Welcome, Diamond, nice to meet you.

Sure sounds like MS, but DX can come slowly. . The above suggestion to get a MS specialist/clinic is a good one. Stick with us for support and let us know how you are doing.