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Old 03-21-2010, 01:05 AM #1
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Join Date: Aug 2006
Location: East Coast USA
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15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
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Hi B2U,
I am on LDN. My Neuro said she can only prescribe the DMD's. She has a new practice by herself. She called my PCP and then called me and said any PCP can prescribe this drug because it has been around for 40 something years, I forgot how long she said.

He said he will prescribe it and he did. Since then she has told me that a few MS Centers are prescribing it. For PPMS too, for cognitive benefits, a mood lifter, energy and less fatigue.

I am RRMS but I started at 1.5 mgs for ten days and then went to 3 mgs. I usually have a relapse twice a year. I didn't have one for a full 18 months. That was terrific.

Even when I had the one relapse after that, my MRI showed stable. No progression. I tried to go to 4.5 as my Neuro said to try when I relapsed, but it was too much for me, so I am still on 3.0 mg and loving it.

I feel great everyday, unless I overdo it, then I pay the next day like everyone does. I haven't needed my cane since a few months on LDN. I used a cane for 6 years. I am on it over two years already. I will never stop. It is really great for me.

Side effects: Vivid dreaming that stopped now. That was the only side effect. It is such a tiny dosage off of a 50 mg pill. I call it a chip off a aspirin size pill, a filler is used and it is put in a capsule.

I think timing to take it is important. Before bed. We all make Endorphins at different times so if you go to bed early, you might want to take it in the middle of the night if you get up to go to the BR. JMO But this is just a guess on my part.

Instead of Quinine can you take magnesium for spasms?
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