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RRMS to SPMS how did you get there?

 
 
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Old 03-30-2010, 09:32 AM #1
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Dejibo Dejibo is offline
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Join Date: Jan 2008
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Dejibo Dejibo is offline
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Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
Default RRMS to SPMS how did you get there?
I have been dx as RRMS since 06. Lately I have been having flair after flair, and I am not reaching full recovery between flairs. its been a wild ride! Im tired, and a bit worried.

They are talking about advancing my dx from RRMS to SPMS. What does this really mean? What will it mean for the course of my disease, or treatments? Has anyone here done this?

What advice, or information can you share with me? Im freaked out! I go tomorrow to the big girl hospital and they are going to "talk to me" and try to convince me to get on the "steroid train" EEEK!
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