Well, I am off to the big girl hospital, and am going to get my lecture, and have to decide if I want steroids (they wont force me) and will hear all about their current line of thinking.

I hate this disease.

Good luck, Dej. I hope everything turns out good for you. You do what you feel is best for you.

The big girl hospital said that while they truly believe me to now be SPMS, they dont really wish to put that label on me, because it changes how the insurance companies deal with you, and other advantages that I have as an RRMS patient. once given the SPMS label, they would have to really change gears, and I would lose out on several chances that I have as an RRMS patient. The FDA wouldnt let me continue on some treatments,and would be quite strict with other stuff.

I understand why they are saying that, but ...then again...I give up. I dont care what they call it, as long as they dont quit on me.

Going to the local spot for IVSM tomorrow. I was told that SPMS can have inflammation continue and that it simply means that there is less time between flairs, and that it eventually rolls into just one big ball of "this is the way its gonna be" the rollercoaster sorta levels out, from big high, and big lows, to level rolling. Since MS is an inflammatory disease by definition, steroids are a normal part of treaments for SPMS in THEIR hospital. i was told all hospitals do it differently, and that some believe this, while others believe that, but since I am in THEIR hospital, I am going to get THEIR explaination. So...here we go.

Thanks for all the support.

Dej, I wish you lots of luck and hope you start very soon to kick MS in the butt with the IVSM. Don't forget to eat well before you go so the steroids don't kick your butt.

Wishing you the best.

I've been out of the loop for a while Dej, sorry. I'm shocked to catch up with your news and hoping you can overcome this setback. Take care of yourself.