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04-05-2010, 11:11 PM
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Member
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I'm sorry for that news - but glad that 1. your neuro isn't rushing to put it down in your charts and 2. she hasn't given up on you!
I don't think 3 months on Tysabri is really enough to decide it isn't working yet. 6 months is also low, too, but obviously better than 3. Hopefully you'll show some improvement. Finally - for those of you on Facebook - you will get this - this is one of those posts where I really wish there was a "dislike" button!! 
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04-06-2010, 02:07 AM
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Senior Member
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Legs, That sure is a lot of medication. I hope one or all of them help you. I use Tramodol when I have tooth or surgery pain. I can even use it with the LDN. It is not an opiate, but acts like one, for short term use. I get a few hour of pain relief from it.
I am sorry that you have a new label. I hope she is wrong and the Ty helps after a few months. What about NOVANTRONE® (mitoxantrone)? Have you tried this one? After you clear the Ty out of your system, if she has you switch, it might help you. 
__________________
LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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04-06-2010, 02:27 AM
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Senior Member
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I forgot to mention Ely Lily and company has a drug in cliical trial for pain.
Duloxetine for Multiple Sclerosis Pain Condition: Multiple Sclerosis Interventions: Drug: Duloxetine HCI; Drug: Placebo I can get more on it tomorrow if your interested. Feel better soon. 
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LADY May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind. "Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't. |
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| "Thanks for this!" says: | legzzalot (04-06-2010) |
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04-06-2010, 06:47 AM
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Magnate
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Lady that would be great. Thanks.
__________________
. I am not spoiled! |
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04-06-2010, 08:34 AM
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Grand Magnate
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Legz, sorry to hear about the news.
 But glad to hear your doc is sticking with you on this.
__________________
Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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| "Thanks for this!" says: | legzzalot (04-06-2010) |
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04-06-2010, 09:28 AM
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Elder
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hugs and prayers. Im sorry for your news.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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| "Thanks for this!" says: | legzzalot (04-06-2010) |
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04-06-2010, 10:40 AM
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Grand Magnate
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I am also sorry to hear this. That just plain sucks!!! Sounds like you have a good neuro. Take care!
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| "Thanks for this!" says: | legzzalot (04-06-2010) |
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