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04-06-2010, 07:19 PM
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#1 | |||
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Member
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I took 20mg x3 for 18 yrs for paraplegia and now with MS, 20mg x6.
I still get terrible spasms. Zanaflex eh? |
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| "Thanks for this!" says: | barb02 (04-07-2010), Twinkletoes (04-06-2010) |
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04-07-2010, 06:56 AM
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#2 | |||
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Grand Magnate
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Might want to talk to the doc about weaning down to a smaller dose or to try something else for the spasms. I tried 20mg of the stuff - one dose of 20 at night and one during the day. I couldn't do the day time one.
 My muscles relaxed too much that it felt like my knees were hitting bone on bone when I walked. My MIL just upped her dose and is having the same issue that I did. Hope it gets better soon. 
__________________
Strength comes in all types of packages, even those you don't expect Dx'd MS 2007, Fibro 2009 |
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| "Thanks for this!" says: | barb02 (04-07-2010) |
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04-07-2010, 09:07 AM
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#3 | |||
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Wise Elder
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Jim, as you know is in the same place. We did decrease the Baclofen and increased the Tizantidine and it is helping. We're talking with his doctor tomorrow.
__________________
. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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| "Thanks for this!" says: | barb02 (04-07-2010) |
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04-07-2010, 09:25 AM
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#4 | |||
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Elder
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I think tizanadine did a MUCH better job at my spastic stuff, but I also found wild dreams, and a hyper excitability at night that made it hard to rest.
There are just so many unknowns in this whole mess. I hope you are able to find some comfort.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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04-07-2010, 11:02 AM
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#5 | |||
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Magnate
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on it too and now worse muscle pain, the neuro will not increase anymore though above the 50-60 dose, he said more than that will just get me having side effects more than helping more... and we are talking more on my muscle stuff in end of month. going to PT now though for the muscle spasms too. hugss good luck,sarah
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. KEEP SMILING, LIFE IS TOO SHORT TO WEAR A FROWN!! . |
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| "Thanks for this!" says: | barb02 (04-07-2010) |
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04-08-2010, 09:25 AM
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#6 | ||
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Junior Member
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 I take 50mg of baclofen and feel the same way. but i am so sleepy i have to take a nap and then still am in bed by 8. I feel like half the time i am going to fall. I walk much slower now becuase my legs feel like they weigh 100lbs. I to have an appt with my dr. in May i cannot continue to feel like this and plus i have 2 kids and i cannot be so tired all the time like this.hope you feel better.
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. The bond that links your true family is not one of blood, but of respect and joy in each other's life. |
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| "Thanks for this!" says: | barb02 (04-08-2010) |
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04-08-2010, 06:58 PM
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#7 | |||
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Wise Elder
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Jim's doctor agreed to lower Jim's Baclofen and increase his Tizanadine. He wasn't on board at first but listened and understood what we were telling him.
He did talk a little about Baclofen and how they do not like to prescribe it at higher doses to those still walking. He said it weakens the muscles and makes it harder to walk sometimes. I know what he means because the only reason Jim walked as long as he did was because of stiff legs.
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. . A woman is like a tea bag. You never know how strong she is until she's in hot water. Eleanor Roosevelt |
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| "Thanks for this!" says: | barb02 (04-13-2010) |
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